Evaluating patients' unmet needs in hidradenitis suppurativa: Results from the Global Survey Of Impact and Healthcare Needs (VOICE) Project

Autor: Hessel H. van der Zee, Maïa Delage, Oleg E. Akilov, Hassan Riad, José C. Pascual, Brian Kirby, Angie Parks Miller, Qiang Ju, Solveig Esmann, Robert G. Micheletti, Erica Neuren, Dagfinn Moseng, Øystein Grimstad, L. Thorlacius, Yssra Soliman, Lanqi Wang, Haley B. Naik, Georgios Nikolakis, Amelia Głowaczewska, Noah Goldfarb, Iltefat H. Hamzavi, Gregor B.E. Jemec, Shani Fisher, Errol P. Prens, Jacek C Szepietowski, Joslyn S. Kirby, Evangelos J. Giamarellos-Bourboulis, Steven Daveluy, Denny Cha, Jerry Tan, So Yeon Paek, Falk G. Bechara, Saxon D Smith, Véronique Del Marmol, Steven R. Cohen, Andrew Strunk, Michelle A. Lowes, Christine B. Ardon, Lukasz Matusiak, Amit Garg, John R. Ingram, Christos C. Zouboulis, Christopher Sayed, Afsaneh Alavi, Christina Avgoustou, Thrasyvoulos Tzellos, B. Villumsen, Naomi Kappe, Arnon D. Cohen, Elena Gonzalez Brant, S. Guilbault, R. Hughes, Aude Nassif, Barry I. Resnik

Publikováno v: Journal of the American Academy of Dermatology, 82(2), 366-376. Mosby Inc.
Journal of The American Academy of Dermatology
Journal of The American Academy of Dermatology, Elsevier, 2020, 82 (2), pp.366-376. ⟨10.1016/j.jaad.2019.06.1301⟩
JOURNAL OF THE AMERICAN ACADEMY OF DERMATOLOGY
r-ISABIAL. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica y Sanitaria de Alicante
instname
r-FISABIO: Repositorio Institucional de Producción Científica
Fundación para el Fomento de la Investigación Sanitaria y Biomédica de la Comunitat Valenciana (FISABIO)
r-FISABIO. Repositorio Institucional de Producción Científica
Journal of The American Academy of Dermatology, 2020, 82 (2), pp.366-376. ⟨10.1016/j.jaad.2019.06.1301⟩

Background: A needs assessment for patients with hidradenitis suppurativa (HS) will support advancements in multidisciplinary care, treatment, research, advocacy, and philanthropy. Objective: To evaluate unmet needs from the perspective of HS patient

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::511de13169fee7c6352b0933a36a28ed
https://pure.eur.nl/en/publications/1b2613b5-2006-478a-946c-4ba3ec80a1c6

Contributors

Autor: Afsaneh Alavi, Maria Aleshin, Falk G. Bechara, Richard G. Bennett, Ron Birnbaum, Nicholas Brownstone, Connor R. Buechler, Angel Shree' Byrd, Alexandra P. Charrow, Emily F. Cole, Erin K. Collier, Steven D. Daveluy, Jennifer M. Fernandez, John W. Frew, Amit Garg, Ralph George, Stephanie R. Goldberg, Noah Goldfarb, Sandra Guilbault, Iltefat H. Hamzavi, Paul G. Hazen, Marsha Henderson, Aleksi J. Hendricks, Jennifer L. Hsiao, Tarannum Jaleel, Lydia J. Johnson, Olivier Join-Lambert, Michelle L. Kerns, Alexa B. Kimball, Joslyn S. Kirby, Indermeet Kohli, Joi Lenczowski, Hadar Lev-Tov, Wilson Liao, Michelle A. Lowes, Alexis B. Lyons, Neeta Malviya, Robert G. Micheletti, Peyton C. Morss-Walton, Bridget Myers, Haley B. Naik, Shanthi Narla, Aude Nassif, Tien Viet Nguyen, Georgios Nikolakis, Elizabeth O'Brien, Lauren A.V. Orenstein, Angie Parks-Miller, Zarine S. Patel, Martina L. Porter, Kyla N. Price, Mayur Ramesh, Barry I. Resnik, Monica Rosales Santillan, Muskaan Sachdeva, Daniela P. Sanchez, Kevin T. Savage, Chris Sayed, Monica Shah, Rob Leland Shaver, Vivian Y. Shi, Jan M. Smogorzewski, Farah Succaria, Ryan M. Svoboda, Alyssa M. Thompson, Aristeidis G. Vaiopoulos, Surya A. Veerabagu, Joseph R. Walsh, Maximillian A. Weigelt, Ximena Wortsman, Christos C. Zouboulis

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::523f8d7f3de06dae955db31df30340be
https://doi.org/10.1016/b978-0-323-77724-7.09990-3

The Hidradenitis Suppurativa Foundation

Autor: Nneamaka Ezekwe, Iltefat H. Hamzavi, Angie Parks-Miller

Publikováno v: Journal of the Dermatology Nurses' Association. 13:338-339

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::4e32aabc845b4d714ef6e6008293658c
https://doi.org/10.1097/jdn.0000000000000647