Zobrazeno 1 - 10
of 15
pro vyhledávání: '"Angela J. Rylands"'
Autor:
Melinda Gooderham, Emma Guttman-Yassky, Ken Igawa, Kenji Kabashima, Ehsanollah Esfandiari, Angela J. Rylands, Angela Williams, Annabel Nixon, Jennifer E. Dent, Eric Simpson
Publikováno v:
Dermatology and Therapy, Vol 14, Iss 12, Pp 3351-3366 (2024)
Abstract Introduction In adults with moderate-to-severe atopic dermatitis (AD), rocatinlimab demonstrated significant and progressive improvement in clinical measures of disease severity compared with placebo. This post hoc analysis of a phase 2b stu
Externí odkaz:
https://doaj.org/article/0b0535110a7143f9b153ba7e121236f8
Autor:
Charlotte Jarvis, Renuka Ramakrishnan, Poonam Dharmaraj, Talat Mushtaq, Sanjay Gupta, Angela Williams, Angela J. Rylands, Helen Barham, Annabel Nixon, Suma Uday
Publikováno v:
Bone Reports, Vol 24, Iss , Pp 101819- (2025)
Many adolescents with X-linked hypophosphatemia (XLH) currently have to stop treatment with burosumab at the end of skeletal growth. We describe the experience of a cohort of adolescents with XLH before, during, and after stopping burosumab (median t
Externí odkaz:
https://doaj.org/article/b7eab19070984e788de3f26485323077
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-20 (2022)
Abstract Background Carers of people living with rare diseases report heavy burden and a plethora of unmet needs. A previous parental supportive care needs framework has described the needs of parents of children living with rare diseases, but it is
Externí odkaz:
https://doaj.org/article/f42a5371bdfd4b64b0ce392c2e275956
Autor:
Vrinda Saraff, Annemieke M Boot, Agnès Linglart, Oliver Semler, Pol Harvengt, Angela Williams, Karen M A Bailey, Fiona Glen, Elin Haf Davies, Sue Wood, Stephen Greentree, Angela J Rylands
Publikováno v:
PLoS ONE, Vol 19, Iss 1, p e0295080 (2024)
The importance of patient centricity and keeping the patient at the heart of research design is now well recognised within the healthcare community. The involvement of patient, caregiver and clinician representatives in the study design process may h
Externí odkaz:
https://doaj.org/article/16f26078608f47bda925573937c86d22
Autor:
Karine Briot, Wei Sun, Rachel K Crowley, Maria Luisa Brandi, Stuart H Ralston, Peter Kamenický, Martine Cohen-Solal, Richard Keen, Angela Williams, Muhammad K Javaid, Robin H Lachmann, Annabel Nixon, Mark Nixon, Anne-Lise Lecoq, Sami Kolta, Jennifer S Walsh, Angela J Rylands
Publikováno v:
RMD Open, Vol 9, Iss 1 (2023)
Objectives To report the impact of continued burosumab treatment on clinical laboratory tests of efficacy, patient-reported outcomes (PROs) and ambulatory function in adults with X-linked hypophosphataemia who continued from a 96-week phase 3 study i
Externí odkaz:
https://doaj.org/article/88b9695323e84af5a53817962185f340
Autor:
Coen A. Bernaards, Kathrin I. Fischer, Angela J. Rylands, Adam Gater, Chloe Tolley, Steven H. Zarit, Claire J. Lansdall
Publikováno v:
Current Alzheimer research.
Background: Caring for an individual with Alzheimer’s disease (AD) is an allencompassing challenge that affects daily life. Assessment of the care partner experience is needed to support the development and evaluation of successful interventions fo
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::05ea106100e29b60a764724885870375
https://pubmed.ncbi.nlm.nih.gov/36588335
https://pubmed.ncbi.nlm.nih.gov/36588335
Autor:
Peter Kamenicky, Karine Briot, Maria Luisa Brandi, Martine Cohen-Solal, Rachel K Crowley, Richard Keen, Sami Kolta, Robin H Lachmann, Anne-Lise Lecoq, Stuart H Ralston, Jennifer S Walsh, Angela J Rylands, Angela Williams, Wei Sun, Annabel Nixon, Mark Nixon, Muhammad K Javaid
Publikováno v:
RMD Open. 9:e002676
ObjectivesTo report the impact of continued burosumab treatment on clinical laboratory tests of efficacy, patient-reported outcomes (PROs) and ambulatory function in adults with X-linked hypophosphataemia who continued from a 96-week phase 3 study in
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::13cdc4690a7ef4930810072da6387319
https://doi.org/10.1136/rmdopen-2022-002676
https://doi.org/10.1136/rmdopen-2022-002676
Autor:
Angela J Rylands, Angela Williams, Leanne M Ward, Erik A. Imel, Muhammad Javaid, Karl L. Insogna, Rafael Pinedo-Villanueva
Publikováno v:
The Journal of clinical endocrinology and metabolism. 107(3)
Context Patients with X-linked hypophosphatemia (XLH) experience multiple musculoskeletal manifestations throughout adulthood. Objective To describe the burden of musculoskeletal features and associated surgeries across the lifespan of adults with XL
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4f997cea3503188a21ae60955cd4b583
https://pubmed.ncbi.nlm.nih.gov/34636401
https://pubmed.ncbi.nlm.nih.gov/34636401
Publikováno v:
Journal of the Endocrine Society
Context X-linked hypophosphatemia (XLH) is a rare, genetic phosphate-wasting disease resulting in bone, muscular, and dental problems, beginning in childhood and increasing in adulthood. Objective This qualitative analysis aimed to explore patient-re
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f5d2362882debab6ec6ef785ecac5cdd
http://europepmc.org/articles/PMC8272533
http://europepmc.org/articles/PMC8272533
Publikováno v:
Advances in Therapy
Introduction European Society of Endocrinology (ESE) guidelines provide goals for hypoparathyroidism management but do not define characteristics of chronic hypoparathyroidism that is not adequately controlled. Three European country-specific Delphi
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c64683bcf80fdbb3be883926a7ec4731
https://pubmed.ncbi.nlm.nih.gov/31587144
https://pubmed.ncbi.nlm.nih.gov/31587144