PRECIOUS demonstrated satisfactory measurement properties for assessing the quality of care for children with serious illnesses.

Autor: Ang FJL; Programme in Health Services & Systems Research, Duke-NUS Medical School, Singapore, Singapore; Lien Centre for Palliative Care, Duke-NUS Medical School, Singapore, Singapore. Electronic address: felicia.ang@u.duke.nus.edu., Cheung YB; Programme in Health Services & Systems Research, Duke-NUS Medical School, Singapore, Singapore; Center for Quantitative Medicine, Duke-NUS Medical School, Singapore, Singapore; Tampere Center for Child, Adolescent and Maternal Health Research, Tampere University, Finland., Gandhi M; Programme in Health Services & Systems Research, Duke-NUS Medical School, Singapore, Singapore; Lien Centre for Palliative Care, Duke-NUS Medical School, Singapore, Singapore; Center for Quantitative Medicine, Duke-NUS Medical School, Singapore, Singapore; Tampere Center for Child, Adolescent and Maternal Health Research, Tampere University, Finland; Biostatistics, Singapore Clinical Research Institute, Singapore, Singapore., Østbye T; Programme in Health Services & Systems Research, Duke-NUS Medical School, Singapore, Singapore; Duke Global Health Institute, Duke University, Durham, USA., Malhotra C; Programme in Health Services & Systems Research, Duke-NUS Medical School, Singapore, Singapore; Lien Centre for Palliative Care, Duke-NUS Medical School, Singapore, Singapore., Malhotra R; Programme in Health Services & Systems Research, Duke-NUS Medical School, Singapore, Singapore; Centre for Ageing Research and Education, Duke-NUS Medical School, Singapore, Singapore., Chow CC; Children's Complex and Home Care Services, KK Women's & Children's Hospital, Singapore, Singapore; Department of Paediatrics, KK Women's & Children's Hospital, Singapore, Singapore., Chong PH; HCA Hospice Limited, Singapore, Singapore., Amin Z; Department of Neonatology, Khoo Teck Puat-National University Children's Medical Institute, National University Hospital, Singapore, Singapore; Department of Paediatrics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapore., Tan TSZ; Department of Paediatrics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapore; Department of Paediatrics, Khoo Teck Puat-National University Children's Medical Institute, National University Hospital, Singapore, Singapore., Tewani K; Women's Palliative Care Service, Perinatal Palliative Care, KK Women's & Children's Hospital, Singapore, Singapore; Academic Clinical Programme, Duke-NUS Medical School, Singapore, Singapore., Buang SNH; Department of Paediatrics, KK Women's & Children's Hospital, Singapore, Singapore., Finkelstein EA; Programme in Health Services & Systems Research, Duke-NUS Medical School, Singapore, Singapore; Lien Centre for Palliative Care, Duke-NUS Medical School, Singapore, Singapore; Duke Department of Population Health Sciences, Duke University, Durham, USA.

Publikováno v: Journal of clinical epidemiology [J Clin Epidemiol] 2024 Apr; Vol. 168, pp. 111286. Date of Electronic Publication: 2024 Feb 19.

A qualitative exploration of parental perspectives on quality of care for children with serious illnesses.

Autor: Ang FJL; Lien Centre for Palliative Care, Programme in Health Services and Systems Research, Duke-NUS Medical School, Singapore, Singapore., Chow CC; Department of Paediatrics, KK Women's & Children's Hospital, Singapore, Singapore., Chong PH; HCA Hospice Limited, Singapore, Singapore., Tan TSZ; Department of Paediatrics, Khoo Teck Puat-National University Children's Medical Institute, National University Hospital, Singapore, Singapore., Amin Z; Department of Neonatology, Khoo Teck Puat-National University Children's Medical Institute, National University Hospital, Singapore, Singapore.; Department of Paediatrics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapore., Buang SNH; Department of Paediatrics, KK Women's & Children's Hospital, Singapore, Singapore., Finkelstein EA; Lien Centre for Palliative Care, Programme in Health Services and Systems Research, Duke-NUS Medical School, Singapore, Singapore.; Global Health Institute, Duke University, Durham, NC, United States.

Publikováno v: Frontiers in pediatrics [Front Pediatr] 2023 Jul 28; Vol. 11, pp. 1167757. Date of Electronic Publication: 2023 Jul 28 (Print Publication: 2023).

HSD41 Development of 'Quality of Care for Patients With Advanced Illnesses (QCPAI)' Instrument for Measuring the Quality of End-of-Life Care From Patients’ Perspective

Autor: Gandhi, M, Ang, FJL, Neo, SHS, Teo, I, Yee, A, Wong, J, Kanesvaran, R, Ozdemir, S, Cheung, YB, Finkelstein, EA

Publikováno v: In Value in Health December 2022 25(12) Supplement:S281-S281

Financial difficulties and patient-reported outcomes among patients with advanced heart failure.

Autor: Malhotra C; Lien Centre for Palliative Care, Duke-NUS Medical School, 8 College Road, Singapore, 169857, Singapore. Chetna.malhotra@duke-nus.edu.sg.; Program in Health Services and Systems Research, Duke-NUS Medical School, 8 College Road, Singapore, 169857, Singapore. Chetna.malhotra@duke-nus.edu.sg., Bundoc F; Lien Centre for Palliative Care, Duke-NUS Medical School, 8 College Road, Singapore, 169857, Singapore., Ang FJL; Lien Centre for Palliative Care, Duke-NUS Medical School, 8 College Road, Singapore, 169857, Singapore.; Program in Health Services and Systems Research, Duke-NUS Medical School, 8 College Road, Singapore, 169857, Singapore., Ozdemir S; Lien Centre for Palliative Care, Duke-NUS Medical School, 8 College Road, Singapore, 169857, Singapore.; Program in Health Services and Systems Research, Duke-NUS Medical School, 8 College Road, Singapore, 169857, Singapore., Teo I; Lien Centre for Palliative Care, Duke-NUS Medical School, 8 College Road, Singapore, 169857, Singapore.; Centre for Quantitative Medicine, Duke-NUS Medical School, 8 College Road, Singapore, 169857, Singapore., Sim D; National Cancer Centre Singapore, 11 Hospital Dr, Singapore, 169610, Singapore., Jaufeerally FR; National Heart Centre Singapore, 5 Hospital Drive, Singapore, 169609, Singapore.; Singapore General Hospital, Outram Road, Singapore, 169608, Singapore., Aung T; National Heart Centre Singapore, 5 Hospital Drive, Singapore, 169609, Singapore., Finkelstein E; Lien Centre for Palliative Care, Duke-NUS Medical School, 8 College Road, Singapore, 169857, Singapore.; Program in Health Services and Systems Research, Duke-NUS Medical School, 8 College Road, Singapore, 169857, Singapore.

Publikováno v: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2021 May; Vol. 30 (5), pp. 1379-1387. Date of Electronic Publication: 2021 Apr 09.

The experience of people living with heart failure in Ethiopia: A qualitative descriptive study.

Autor: Mulugeta, Henok^1,2 (AUTHOR) mulugetahenok68@gmail.com, Sinclair, Peter M.² (AUTHOR), Wilson, Amanda² (AUTHOR)

Publikováno v: PLoS ONE. 10/24/2024, Vol. 19 Issue 10, p1-20. 20p.