Zobrazeno 1 - 10
of 15
pro vyhledávání: '"Ana Babac"'
Autor:
Klaus Pfeiffer, Christina Theurer, Gisela Büchele, Ana Babac, Helene Dick, Gabriele Wilz, the ReDiCare study group
Publikováno v:
BMC Geriatrics, Vol 21, Iss 1, Pp 1-16 (2021)
Abstract Background Providing care for someone with a disease or chronic condition can have a negative psychological, physical, social, and economic impact upon informal caregivers. Despite the socio-economic relevance and more than three decades of
Externí odkaz:
https://doaj.org/article/2b170e87120f4d7f9b2d07d58f2991fd
Autor:
Svenja Litzkendorf, Martin Frank, Ana Babac, Daniel Rosenfeldt, Franziska Schauer, Tobias Hartz, J.-Matthias Graf von der Schulenburg
Publikováno v:
BMC Public Health, Vol 20, Iss 1, Pp 1-14 (2020)
Abstract Background Finding reliable information on one of more than 7000 rare diseases is a major challenge for those affected. Since rare diseases are defined only by the prevalence criterion, a multitude of heterogeneous diseases are included. Com
Externí odkaz:
https://doaj.org/article/20f799d1b02744f896a286975b6c5e8b
Publikováno v:
Health Economics Review, Vol 9, Iss 1, Pp 1-17 (2019)
Abstract Background Since the implementation of the Regulation on Patient Integration (2003), the Act on the Reorganization of the Pharmaceutical Market (2011), and the Patient Rights Law (2013), the inclusion of patient perspectives has been further
Externí odkaz:
https://doaj.org/article/a02c93154c8f4c40afc9cbbe9ba45d14
Autor:
Ana Babac, Verena von Friedrichs, Svenja Litzkendorf, Jan Zeidler, Kathrin Damm, J.-Matthias Graf von der Schulenburg
Publikováno v:
BMC Medical Informatics and Decision Making, Vol 19, Iss 1, Pp 1-17 (2019)
Abstract Background Many European countries have recently implemented national rare disease plans. Although the network is strengthening, especially on the macro and meso levels, patients still go a long way through healthcare systems, with many heal
Externí odkaz:
https://doaj.org/article/6b3ba6c61d6844ed9cedb654924d13e4
Autor:
Ana Babac, Martin Frank, Frédéric Pauer, Svenja Litzkendorf, Daniel Rosenfeldt, Verena Lührs, Lisa Biehl, Tobias Hartz, Holger Storf, Franziska Schauer, Thomas O. F. Wagner, J-Matthias Graf von der Schulenburg
Publikováno v:
BMC Health Services Research, Vol 18, Iss 1, Pp 1-14 (2018)
Abstract Background Rare diseases are, by definition, very serious and chronic diseases with a high negative impact on quality of life. Approximately 350 million people worldwide live with rare diseases. The resulting high disease burden triggers hea
Externí odkaz:
https://doaj.org/article/b75454208e5643aa8a23af54ee966039
Autor:
Franziska Schauer, Ana Babac, Tobias Hartz, J.-Matthias Graf von der Schulenburg, Martin Frank, Svenja Litzkendorf, Daniel Rosenfeldt
Background: Finding reliable information on one of more than 7,000 rare diseases is a major challenge for those affected. Since rare diseases are defined only by the prevalence criterion, a multitude of heterogeneous diseases are included. Common to
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::697666f4004a145351f3ae0e402d5b3e
https://doi.org/10.21203/rs.2.13051/v1
https://doi.org/10.21203/rs.2.13051/v1
Autor:
J-Matthias Graf von der Schulenburg, Lisa Biehl, Frédéric Pauer, Jens Göbel, Leena Bruckner-Tuderman, Holger Storf, Franziska Schauer, Verena Lührs, Ana Babac, Jörg Schmidtke, Martin Frank, Svenja Litzkendorf, Tof Wagner, Tobias Hartz
Publikováno v:
JMIR Research Protocols
Recently, public and political interest has focused on people living with rare diseases and their health concerns. Due to the large number of different types of rare diseases and the sizable number of patients, taking action to improve the life of th
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d3da94a3969f45ea9971f393880834ca
http://europepmc.org/articles/PMC6303670
http://europepmc.org/articles/PMC6303670
Autor:
Svenja Litzkendorf, Tobias Hartz, Jens G�bel, Holger Storf, Fr�d�ric Pauer, Ana Babac, Verena L�hrs, Leena Bruckner-Tuderman, Franziska Schauer, J�rg Schmidtke, Lisa Biehl, TOF Wagner, J-Matthias Graf von der Schulenburg, Martin Frank
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::830c9d146b9d96f54bb8b85496921c94
https://doi.org/10.2196/preprints.11248
https://doi.org/10.2196/preprints.11248
Autor:
Ana, Babac, Svenja, Litzkendorf, Katharina, Schmidt, Frédéric, Pauer, Kathrin, Damm, Martin, Frank, Johann-Matthias, Graf von der Schulenburg
Publikováno v:
Interactive Journal of Medical Research
Background Despite diverging definitions on rare conditions, people suffering from rare diseases share similar difficulties. A lack of experience by health professionals, a long wait from first symptoms to diagnosis, scarce medical and scientific kno
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=pmid________::3fed50208ec22651c89fc8941f238cfa
https://pubmed.ncbi.nlm.nih.gov/29158209
https://pubmed.ncbi.nlm.nih.gov/29158209
Autor:
Svenja Litzkendorf, Tobias Hartz, Jens Göbel, Holger Storf, Frédéric Pauer, Ana Babac, Verena Lührs, Leena Bruckner-Tuderman, Franziska Schauer, Jörg Schmidtke, Lisa Biehl, TOF Wagner, J-Matthias Graf von der Schulenburg, Martin Frank
BACKGROUND Recently, public and political interest has focused on people living with rare diseases and their health concerns. Due to the large number of different types of rare diseases and the sizable number of patients, taking action to improve the
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::637c2971d28d29244072fe8a84c164e2
https://doi.org/10.2196/preprints.7425
https://doi.org/10.2196/preprints.7425