Drivers of Satisfaction With Care for Patients With Lupus

Autor: Meenakshi Jolly, Bhavika Sethi, Courtney O'Brien, Winston Sequeira, Joel A. Block, Sergio Toloza, Ana Bertoli, Ivana Blazevic, Luis M. Vilá, Ioana Moldovan, Karina D. Torralba, Elvira Cicognani, Davide Mazzoni, Sarfaraz Hasni, Berna Goker, Seminur Haznedaroglu, Josiane Bourre‐Tessier, Sandra V. Navarra, Chi Chiu Mok, Ann Clarke, Michael Weisman, Daniel Wallace

Publikováno v: ACR Open Rheumatology, Vol 1, Iss 10, Pp 649-656 (2019)

Objective Quality of life (QOL) and quality of care (QOC) in systemic lupus erythematosus (SLE) remains poor. Satisfaction with care (SC), a QOC surrogate, correlates with health behaviors and outcomes. This study aimed to determine correlates of SC

Externí odkaz: https://doaj.org/article/31c0257e19704594b25f6c6517621ff8

Environmental and societal factors associated with COVID-19-related death in people with rheumatic disease: an observational study

Autor: Zara Izadi, Milena A Gianfrancesco, Gabriela Schmajuk, Lindsay Jacobsohn, Patricia Katz, Stephanie Rush, Clairissa Ja, Tiffany Taylor, Kie Shidara, Maria I Danila, Katherine D Wysham, Anja Strangfeld, Elsa F Mateus, Kimme L Hyrich, Laure Gossec, Loreto Carmona, Saskia Lawson-Tovey, Lianne Kearsley-Fleet, Martin Schaefer, Samar Al-Emadi, Jeffrey A Sparks, Tiffany Y-T Hsu, Naomi J Patel, Leanna Wise, Emily Gilbert, Alí Duarte-García, Maria O Valenzuela-Almada, Manuel F Ugarte-Gil, Lotta Ljung, Carlo A Scirè, Greta Carrara, Eric Hachulla, Christophe Richez, Patrice Cacoub, Thierry Thomas, Maria J Santos, Miguel Bernardes, Rebecca Hasseli, Anne Regierer, Hendrik Schulze-Koops, Ulf Müller-Ladner, Guillermo Pons-Estel, Romina Tanten, Romina E Nieto, Cecilia N Pisoni, Yohana S Tissera, Ricardo Xavier, Claudia D Lopes Marques, Gecilmara C S Pileggi, Philip C Robinson, Pedro M Machado, Emily Sirotich, Jean W Liew, Jonathan S Hausmann, Paul Sufka, Rebecca Grainger, Suleman Bhana, Monique Gore-Massy, Zachary S Wallace, Jinoos Yazdany, Brahim Dahou, Gimena Gómez, Karen Roberts, Roberto M Baez, Vanessa V Castro Coello, María J Haye Salinas, Federico N Maldonado, Alvaro A Reyes, Gelsomina Alle, Hernán Maldonado Ficco, Romina Nieto, Carla Gobbi, Yohana Tissera, Cecilia Pisoni, Alba Paula, Juan A Albiero, Maria M Schmid, Micaela Cosatti, Maria J Gamba, Carlevaris Leandro, María A Cusa, Noelia German, Veronica Bellomio, Lorena Takashima, Mariana Pera, Karina Cogo, Maria S Gálvez Elkin, María A Medina, Veronica Savio, Romina Rojas Tessel, Rodolfo P Alamino, Marina L Werner, Sofía Ornella, Luciana Casalla, Maria de la Vega, María Severina, Mercedes García, Luciana Gonzalez Lucero, Cecilia Romeo, Sebastián Moyano, Tatiana Barbich, Ana Bertoli, Andrea Baños, Sandra Petruzzelli, Carla Matellan, Silvana Conti, Maria A Lazaro, Gustavo F Rodriguez Gil, Fabian Risueño, Maria I Quaglia, Julia Scafati, Natalia L Cuchiaro, Jonathan E Rebak, Susana I Pineda, María E Calvo, Eugenia Picco, Josefina G Yanzi, Pablo Maid, Debora Guaglianone, Julieta S Morbiducci, Sabrina Porta, Natalia Herscovich, José L Velasco Zamora, Boris Kisluk, Maria S Castaños Menescardi, Rosana Gallo, María V Martire, Carla Maldini, Cecilia Goizueta, Sabrina S de la Vega Fernandez, Carolina Aeschlimann, Gisela Subils, Eva Rath, Yves Piette, Mieke Devinck, Bea Maeyaert, Francinne Machado Ribeiro, Sandra L Euzebio Ribeiro, Marcelo Pinheiro, Sebastián Ibáñez, Anne-Marie Chassin Trubert, Lingli Dong, Lui Cajas, Marko Barešić, Branimir Anić, Melanie-Ivana Ćulo, Tea A Pavelić, Kristina K Stranski, Boris Karanovic, Jiri Vencovsky, Marta Píchová, Maria Filkova, Hesham Hamoud, Dimitrios Vassilopoulos, Gabriela M Guzman Melgar, Ho So, Márta Király, Mahdi Vojdanian, Alexandra Balbir Gurman, Fatemah Abutiban, Julija Zepa, Inita Bulina, Loreta Bukauskiene, Beatriz E Zazueta Montiel, Angel A Castillo Ortiz, Erick Zamora Tehozol, David Vega Morales, Diana Cervántes Rosete, Eduardo Martín Nares, Tatiana S Rodriguez Reyna, Marina Rull Gabayet, Deshiré Alpízar Rodríguez, Fedra Irazoque, Xochitl Jimenez, Lenny Geurts van Bon, Theo Zijlstra, Monique Hoekstra, Nasra Al Adhoubi, Babur Salim, Enrique Giraldo, Ariel Salinas, Manuel Ugarte Gil, Jarosław Nowakowski, Richard Conway, Rachael Flood, Geraldine McCarthy, Ioana Felea, Ileana Filipescu, Simona Rednic, Laura Groseanu, Maria M Tamas, Vanda Mlynarikova, Martina Skamlova, Martin Zlnay, Dagmar Mičeková, Lubica Capova, Zelmira Macejova, Emőke Šteňová, Helena Raffayova, Gabriela Belakova, Eva Strakova, Marieta Senčarová, Soňa Žlnayová, Anna Sabová, Daniela Spisakova, Mária Oetterová, Olga Lukacova, Martina Bakosova, Alojzija Hocevar, Natalia de la Torre Rubio, Juan J Alegre Sancho, Montserrat Corteguera Coro, Juan C Cobeta Garcia, Maria C Torres Martin, Jose Campos, Jose A Gomez Puerta, Gozd K Yardimci, Servet Akar, Ozan C Icacan, Selda ÇELİK, Viktoriia Vasylets, Su-Ann Yeoh, Claire Vandevelde, Sasha Dunt, Jane Leeder, Elizabeth Macphie, Rosaria Salerno, Christine Graver, Katie Williams, Sheila O'Reilly, Kirsty Devine, Jennifer Tyler, Elizabeth Warner, James Pilcher, Samir Patel, Elena Nikiphorou, Laura Chadwick, Caroline M Jones, Beverley Harrison, Lucy Thornton, Diana O'Kane, Lucia Fusi, Audrey Low, Sarah Horton, Shraddha Jatwani, Sara Baig, Hammad Bajwa, Vernon Berglund, Angela Dahle, Walter Dorman, Jody Hargrove, Maren Hilton, Nicholas Lebedoff, Susan Leonard, Jennifer Morgan, Emily Pfeifer, Archibald Skemp, Jeffrey Wilson, Anne Wolff, Eduardo Cepeda, Derrick Todd, Denise Hare, Cassandra Calabrese, Christopher Adams, Arezou Khosroshahi, Adam Kilian, Douglas White, Melanie Winter, Theodore Fields, Caroline Siegel, Nicole Daver, Melissa Harvey, Neil Kramer, Concetta Lamore, Suneya Hogarty, Karen Yeter, Faizah Siddique, Byung Ban, Tamar Tanner, Eric Ruderman, William Davis, Robert Quinet, Evangeline Scopelitis, Karen Toribio, Tameka Webb Detiege, Jerald Zakem, Khurram Abbass, Gilbert Kepecs, Lilliam Miranda, Michael Guma, Ammar Haikal, Sushama Mody, Daric Mueller, Arundathi Jayatilleke, JoAnn Zell, Alison Bays, Kathryn Dao, Fatemeh Ezzati, Deborah Parks, David Karp, Guillermo Quiceno

Publikováno v: The Lancet. Rheumatology, vol 4, iss 9

Published by Elsevier Ltd.
Background: Differences in the distribution of individual-level clinical risk factors across regions do not fully explain the observed global disparities in COVID-19 outcomes. We aimed to investigate the associations b

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4ed5ed08e049b66567e80cf7a8b60844
https://escholarship.org/uc/item/4009n0ps

Outcomes of COVID-19 in patients with primary systemic vasculitis or polymyalgia rheumatica from the COVID-19 Global Rheumatology Alliance physician registry: a retrospective cohort study

Autor: Maria Sol Castaños Menescardi, Mercedes García, Elena Nikiphorou, Ulf Müller-Ladner, Rita Pinheiro Torres, Cassandra Calabrese, Nasra Al-Adhoubi, Sandra Lucia Euzebio Ribeiro, Kaley Beins, Puja Mehta, José Luis Velasco Zamora, Lorena Takashima, Loreta Bukauskiene, Derrick Todd, Gozd Kubra Yardimci, Samia Araujo de Sousa Studart, Ariel Salinas, Babur Salim, Martin Schaefer, Sarah Horton, Bea Maeyaert, Andrea M Seet, Beverley Harrison, Vernon Berglund, Douglas White, Archibald Skemp, Vanessa Castro Coello, Susan Leonard, Guillermo Quiceno, Geraldine McCarthy, Neil Kramer, Reinhard E. Voll, Helena Raffayova, Lianne Kearsley-Fleet, Hernán Maldonado Ficco, Emily L Gilbert, Samir Patel, Arezou Khosroshahi, Boris Karanovic, Jaroslaw Nowakowski, Dagmar Miceková, Márta Király, Saskia Lawson-Tovey, Alison Bays, Katie Williams, Pablo Maid, Montserrat Corteguera Coro, Anna Anna Sabová, Noelia German, Rosana Gallo, María Alejandra Cusa, Philip Robinson, Natalia Herscovich, Branimir Anic, Lorna Neill, Sara Baig, James Pilcher, Lucia Fusi, Jerald Zakem, Eugenia Picco, Monique Hoekstra, Michael S. Putman, Veronica Bellomio, Martina Skamlova, Daniela Spisakova, Caroline Mulvaney Jones, Ezzati Fatemeh, Sona Žlnayová, Silvana Conti, Eva Strakova, Jose A Gomez Puerta, Kristin M D’Silva, Marko Barešic, Yohana Tissera, Roberto Miguel Baez, Theodore Fields, Rachael Flood, Josefina Gallino Yanzi, Fatemah Abutiban, Henrique Ataide Mariz, Martin Zlnay, Mariana Luís, Mariana Pera, Robert Quinet, Claire Vandevelde, Richard Conway, Lubica Capova, Rodolfo Perez Alamino, Romina Nieto, Deborah Parks, Denise Hare, Audrey Low, Faizah Siddique, Zachary S. Wallace, Tiffany Y-T Hsu, Tameka Webb-Detiege, Sheila O'Reilly, Tatiana Barbich, Theo Zijlstra, Kathryn Dao, Luca Quartuccio, Cecilia Pisoni, Maria Isabel Quaglia, Zelmira Macejova, Laure Gossec, Jean W Liew, JoAnn Zell, Tiffany Y.T. Hsu, Rebecca Hasseli, Zara Izadi, Francinne Machado Ribeiro, Christopher Adams, Laura Chadwick, Naomi J Patel, Maria Carmen Torres Martin, Emoke Štenová, Fedra Irazoque, Natalia Lili Cuchiaro, Selda Çelik, Maria Isabel Haye Salinas, Alexandra Balbir-Gurman, Lucy Thornton, Shraddha Jatwani, Jane Leeder, Jeffrey A. Sparks, Pedro Machado, Elizabeth Macphie, Alojzija Hocevar, Melanie Winter, Christopher Hill, Carolina Aeschlimann, Loreto Carmona, Viktoriia Vasylets, Jose Campos, Jiri Vencovsky, Romina Tanten, Karina Cogo, Emily Pfeifer, Zachary S Wallace, Erick Zamora Tehozol, David F L Liew, Christine Graver, Cecilia Romeo, Lenny Geurts-van Bon, Alvaro Andres Reyes Torres, Arundathi Jayatilleke, Lui Cajas, Ana Bertoli, María Victoria Martire, Pascal Chazerain, Boris Kisluk, Anne Wolff, Alba Paula, Maria Marcela Schmid, Marieta Sencarová, Manuel F. Ugarte-Gil, Concetta Lamore, Veronica Savio, Emily Sirotich, Nicole Daver, Inita Bulina, Maria Filkova, Samar Al-Emadi, Jennifer Tyler, Ho So, Anne-Marie Chassin-Trubert, Leanna Wise, Davide Rozza, Yves Piette, Sabrina Solange de la Vega Fernandez, Eva Rath, Angel Alejandro Castillo Ortiz, Simona Rednic, Stéphane Bally, Kimme L Hyrich, Eric Ruderman, Gabriela Maria Guzman Melgar, Diana Cervántes Rosete, Alí Duarte-García, Juan Carlos Cobeta Garcia, Vanda Mlynarikova, Byung Ban, David Karp, Juan José Alegre Sancho, Carlevaris Leandro, Tamar Tanner, Gisela Subils, Susana Isabel Pineda, Ileana Filipescu, Lilliam Miranda, Karen Toribio Toribio, Karen Roberts, María Severina, Maria Valenzuela Almada, Kristin M. D’Silva, Tea Ahel Pavelic, Federico Nicolas Maldonado, Lingli Dong, Kirsty Devine, Ammar Haikal, Sebastian E Sattui, María J. Haye Salinas, Karen Yeter, Jennifer Morgan, Maria Julieta Gamba, Carla Matellan, Juan Alejandro Albiero, Angela Dahle, Martina Bakosova, Julija Zepa, Luciana Casalla, Jonathan S. Hausmann, Andrea Baños, William Davis, Elsa F Mateus, Kristina Kovacevic Stranski, Lindsay Jacobsohn, Milena A. Gianfrancesco, Daric Mueller, Eduardo Cepeda, Tatiana Sofia Rodriguez-Reyna, Sarah L. Mackie, Mahdi Vojdanian, Julieta Silvana Morbiducci, Enrique Giraldo, Gustavo Fabián Rodriguez Gil, Ivana Romina Rojas Tessel, Laura Groseanu, Carla Gobbi, Anja Strangfeld, Maria Soledad Gálvez Elkin, Alexandre Tj Maria, Adam Kilian, Marina Laura Werner, Sebastián Ibáñez, Sushama Mody, Melissa Harvey, Sofía Ornella, Melanie-Ivana Culo, Gabriela Belakova, Luciana Gonzalez Lucero, Marcelo Pinheiro, Natalia de la Torre-Rubio, Sasha Dunt, Khurram Abbass, Jeffrey A Sparks, Beatriz Zaueta, Elizabeth Warner, Servet Akar, Maren Hilton, Evangeline Scopelitis, Julia Scafati, Jeffrey Wilson, Marta Píchová, Rosana Quintana, Mária Oetterová, Diana O'Kane, Paul Sufka, Jinoos Yazdany, Mieke Devinck, Eduardo Martín Nares, Michael Guma, Gimena Gomez, Nicholas Lebedoff, Su-Ann Yeoh, Suneya Hogarty, Sandra Petruzzelli, Ma. Alicia Lazaro, Marina Rull Gabayet, Nafice Costa Araujo, Bimba F Hoyer, Maria Magdelena Tamas, Cecilia Goizueta, María Alejandra Medina, David Vega, Xochitl Jimenez, Rebecca Grainger, Micaela Cosatti, Gilbert Kepecs, Jonathan Eliseo Rebak, Walter Dorman, Dimitrios Vassilopoulos, Ann Knight, Maria de la Vega, Deshiré Alpízar-Rodríguez, Caroline Siegel, Ozan Cemal Icacan, María Elena Calvo, Sabrina Porta, Hesham Hamoud, Sandra Lucia Euzebio Ribeirio, Maxime Samson, Suleman Bhana, Gelsomina Alle, Ioana Felea, Sebastián Moyano, Rosaria Salerno, Carla Maldini, Jody Hargrove, Brahim Dahou, Fabian Risueño, Debora Guaglianone, Olga Lukacova, Hammad Bajwa

Publikováno v: Sattui, S E, Conway, R, Putman, M S, Seet, A M, Gianfrancesco, M A, Beins, K, Hill, C, Liew, D, Mackie, S L, Mehta, P, Neill, L, Gomez, G, Salinas, M I H, Maldonado, F N, Mariz, H A, de Sousa Studart, S A, Araujo, N C, Knight, A, Rozza, D, Quartuccio, L, Samson, M, Bally, S, Maria, A TJ, Chazerain, P, Hasseli, R, Müller-Ladner, U, Hoyer, B F, Voll, R, Torres, R P, Luis, M, Ribeirio, S L E, Al-Emadi, S, Sparks, J A, Hsu, T Y T, D'Silva, K M, Patel, N J, Wise, L, Gilbert, E, Almada, M V, Duarte-García, A, Ugarte-Gil, M, Jacobsohn, L, Izadi, Z, Strangfeld, A, Mateus, E F, Hyrich, K L, Gossec, L, Carmona, L, Lawson-Tovey, S & Kearsley-Fleet, L 2021, ' Outcomes of COVID-19 in patients with primary systemic vasculitis or polymyalgia rheumatica from the COVID-19 Global Rheumatology Alliance physician registry: a retrospective cohort study ', The Lancet Rheumatology, vol. 3, no. 12, pp. e855-e864 . https://doi.org/10.1016/S2665-9913(21)00316-7
The Lancet. Rheumatology
The Lancet. Rheumatology, vol 3, iss 12

Summary Background Patients with primary systemic vasculitis or polymyalgia rheumatica might be at a high risk for poor COVID-19 outcomes due to the treatments used, the potential organ damage cause by primary systemic vasculitis, and the demographic

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::528ece7af44ea3e9f380fd1e6c03b438
https://doi.org/10.1016/S2665-9913(21)00316-7

[Mucocutaneous lesions in patients with systemic lupus erythematosus]

Autor: Verónica, Saurit, Ricardo, Campana, Alejandro, Ruiz Lascano, Cristina, Ducasse, Ana, Bertoli, Santiago, Agüero, Alejandro, Alvarellos, Francisco, Caeiro

Publikováno v: Medicina. 63(4)

The objective was to analyze the prevalence of mucocutaneous lesions in patients with systemic lupus erythematosus (SLE). During a 3-year period, we analyzed 77 patients with a diagnosis of SLE. The mucocutaneous lesions were classified into specific

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid________::9f8e18fc58b94bf33fda6e7d33e60984
https://pubmed.ncbi.nlm.nih.gov/14518140

Drivers of Satisfaction With Care for Patients With Lupus

Autor: Sarfaraz Hasni, Sandra V. Navarra, Luis M. Vilá, Berna Goker, Meenakshi Jolly, Ana M. Bertoli, Ivana Blazevic, Karina D. Torralba, Daniel J. Wallace, Joel A. Block, Josiane Bourré-Tessier, Davide Mazzoni, Courtney O'Brien, Seminur Haznedaroglu, Michael H. Weisman, Ioana Moldovan, Sergio Toloza, Bhavika Sethi, Chi Chiu Mok, Ann E. Clarke, Winston Sequeira, Elvira Cicognani

Publikováno v: ACR Open Rheumatology, Vol 1, Iss 10, Pp 649-656 (2019)
ACR Open Rheumatology

Objective Quality of life (QOL) and quality of care (QOC) in systemic lupus erythematosus (SLE) remains poor. Satisfaction with care (SC), a QOC surrogate, correlates with health behaviors and outcomes. This study aimed to determine correlates of SC

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::56225184a19c394f3627b164ae3f70d3
https://avesis.gazi.edu.tr/publication/details/c3a86bed-0840-4a0c-83dc-65b178f85797/oai