Comparative effectiveness of paediatric kidney stone surgery (the PKIDS trial): study protocol for a patient-centred pragmatic clinical trial

Autor: Jing Huang, Aaron Krill, Nicolas Fernandez, Laura Kurth, David I Chu, Jonathan S Ellison, Matthew Lorenzo, Hunter Beck, Ruth Beck, Christopher Forrest, Amy Kratchman, Anna Kurth, Michael Kurtz, Thomas Lendvay, Renae Sturm, Gregory Tasian, Arun K Srinivasan, Michelle Denburg, Susan J Back, Christina B Ching, William Robert DeFoor, Ahmad H Bani-Hani, Pamela I Ellsworth, Andrew A Stec, Kyle Rove, Caleb P Nelson, Douglas E Coplen, Christopher E Bayne, Pankaj P Dangle, Linda A Baker, Nicolette K Janzen, Abby S Taylor, Wolfgang H Cerwinka, Eric D Nelson, Justin B Ziemba, Pasquale Casale, Rosalia Misseri, Kate H Kraft, Bhalaajee Meenakshi-Sundaram, Armando Lorenzo, Antoine Selman Fermin

Publikováno v: BMJ Open, Vol 12, Iss 4 (2022)

Introduction The strength of the evidence base for the comparative effectiveness of three common surgical modalities for paediatric nephrolithiasis (ureteroscopy, shockwave lithotripsy and percutaneous nephrolithotomy) and its relevance to patients a

Externí odkaz: https://doaj.org/article/b64a2e578c0e476e9ae32d5ea20fd8d3

The Genomics Research and Innovation Network: creating an interoperable, federated, genomics learning system

Autor: Batsal Devkota, Michal Kouril, Joseph W. St. Geme, Alba Gutierrez, Simone Temporal, Keith Marsolo, Peter White, Joseph A. Majzoub, Alan Yen, Jaspreet Khanna, Julie Wijesooriya, Mike Furgason, Florence T. Bourgeois, Christopher Geehan, Adda Grimberg, Arnold W. Strauss, Becca Harper, Kristen Safier, Aleksandr Nikitin, Andrew Wooten, Vidhu V Thaker, Deanne Taylor, Ingo Helbig, Darlene Barkman, Anil Kumar Degala, Gelvina Stevenson, Eric D. Marsh, Colin P. Hawkes, Andrew Dauber, Jason Stedman, In-Hee Lee, Andrew M. Rupert, Gary R. Fleisher, Ramkrishna Chakrabarty, Piotr Sliz, Alyssa Ellis, Barbara Hallinan, Kenneth D. Mandl, Susan Kornetsky, Bryan A. Wolf, Philip Dexheimer, Alan H. Beggs, Yu Zhang, Erin M. Borglund, Joel N. Hirschhorn, Andrew Joseph Guidetti, Amy Schwarzhoff, Anna Poduri, Gabor Korodi, Louis J. Muglia, Prakash Velayutham, Christopher P. Kirby, Mike Pistone, Allison Heath, Parth Divekar, Judson Kilbourn, Ranjay Kumar, Guillaume Labilloy, Alka Chandel, Ian D. Krantz, Thomas N DeSain, Kristen L. Sund, Lisa J. Martin, James Morgan, Jeremy Nix, Sawona Biswas, Tracy A. Glauser, Paul Avillach, Sek Won Kong, Niloofar Jalali, Jeremy J. Corsmo, Anna Bartels, Amy Kratchman, Bria Morgan

Publikováno v: Genetics in Medicine

Purpose Clinicians and researchers must contextualize a patient’s genetic variants against population-based references with detailed phenotyping. We sought to establish globally scalable technology, policy, and procedures for sharing biosamples and

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e2bcf3e4ee8562cecd775d190e3d12ad
https://doi.org/10.1038/s41436-019-0646-3

So much more than a 'pair of brown shoes': Triumphs of patient and other stakeholder engagement in patient-centered outcomes research

Autor: Amanda Brodt, M.P.P., Christine Norton, M.A., Amy Kratchman

Publikováno v: Patient Experience Journal (2015)

This piece illustrates the “real world” experiences of patients and other stakeholder partners in research to help inform and inspire future patient-centered outcomes research (PCOR) efforts. The Patient-Centered Outcomes Research Institute (PCOR

Externí odkaz: https://doaj.org/article/75bb73bfd4564b98968065c0c9480b5a

Development of the PROMIS Pediatric Sleep Health Item Banks

Autor: Daniel J. Buysse, Amy Kratchman, Carole L. Marcus, Anna De La Motte, Brandon D. Becker, Christopher B. Forrest, Paul A. Pilkonis, Lisa J. Meltzer, Katherine B. Bevans

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::60ad0ba8bb85c8d0eece4a55b81bc910
https://doi.org/10.25302/9.2018.me.140312211

Development and validation of the PROMIS Pediatric Sleep Disturbance and Sleep-Related Impairment item banks

Autor: Carole L. Marcus, Amy Kratchman, Brandon D. Becker, Christopher B. Forrest, Daniel J. Buysse, Paul A. Pilkonis, Katherine B. Bevans, Anna de la Motte, Lisa J. Meltzer

Publikováno v: Sleep. 41

Study objectives To develop and evaluate the measurement properties of child-report and parent-proxy versions of the Patient-Reported Outcomes Measurement Information System (PROMIS) Pediatric Sleep Disturbance and Sleep-Related Impairment item banks

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::77a86e65d7f0296c8633b03a3974a5e4
https://doi.org/10.1093/sleep/zsy054