Evaluating case management for caregivers of children with spinal muscular atrophy type I and II-an exploratory, controlled, mixed-methods trial.

Autor: Willems J; Section of Health Care Research and Rehabilitation Research, Institute of Medical Biometry and Statistics, Faculty of Medicine and Medical Center, University of Freiburg, Freiburg, Germany., Pechmann A; Department of Neuropediatrics and Muscle Disorders, Center for Pediatrics, Faculty of Medicine and Medical Center, University of Freiburg, Freiburg, Germany., Wider S; Department of Neuropediatrics and Muscle Disorders, Center for Pediatrics, Faculty of Medicine and Medical Center, University of Freiburg, Freiburg, Germany., Ambs R; Department of Neuropediatrics and Muscle Disorders, Center for Pediatrics, Faculty of Medicine and Medical Center, University of Freiburg, Freiburg, Germany., Meyer SAN; Department of Neuropediatrics and Muscle Disorders, Center for Pediatrics, Faculty of Medicine and Medical Center, University of Freiburg, Freiburg, Germany., Cascante I; Children's Hospital, Klinikum Esslingen, Esslingen am Neckar, Germany., Sproß J; Deutsche Gesellschaft für Muskelkranke, Waltershofen, Germany., Mund A; Kindernetzwerk e.V., Berlin, Germany., Farin-Glattacker E; Section of Health Care Research and Rehabilitation Research, Institute of Medical Biometry and Statistics, Faculty of Medicine and Medical Center, University of Freiburg, Freiburg, Germany., Langer T; Section of Health Care Research and Rehabilitation Research, Institute of Medical Biometry and Statistics, Faculty of Medicine and Medical Center, University of Freiburg, Freiburg, Germany.

Publikováno v: Frontiers in pediatrics [Front Pediatr] 2023 Sep 20; Vol. 11, pp. 1212012. Date of Electronic Publication: 2023 Sep 20 (Print Publication: 2023).

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