Zobrazeno 1 - 10
of 38
pro vyhledávání: '"Amanda M, Gutierrez"'
Autor:
Christi J. Guerrini, Mary A. Majumder, Jill O. Robinson, Robert Cook-Deegan, Matthew Blank, Juli Bollinger, Janis Geary, Amanda M. Gutierrez, Maya Shrikant, Amy L. McGuire
Publikováno v:
Frontiers in Big Data, Vol 6 (2023)
As entities around the world invest in repositories and other infrastructure to facilitate health data sharing, scalable solutions to data sharing challenges are needed. We conducted semi-structured interviews with 24 experts to explore views on pote
Externí odkaz:
https://doaj.org/article/3b1227c338bb40808d2ba2d0f40b4f94
Autor:
Christi J. Guerrini, Sophie C. Schneider, Andrew G. Guzick, Gifty N. Amos Nwankwo, Isabel Canfield, Savitri Fedson, Amanda M. Gutierrez, Jessica C. Sheu, Amber Y. Song, Alexandra M. Villagran, Amy L. McGuire, Eric A. Storch
Publikováno v:
Frontiers in Psychiatry, Vol 12 (2021)
The COVID-19 pandemic is taking a significant global toll on emotional well-being, but evidence of mental health impacts in the United States remains limited. In April 2020, we conducted an exploratory survey of U.S. residents to understand prevalenc
Externí odkaz:
https://doaj.org/article/70f5faa0e9294b2ea1b44079dd2cf230
Autor:
Amanda M. Gutierrez, Jill O. Robinson, Simon M. Outram, Hadley S. Smith, Stephanie A. Kraft, Katherine E. Donohue, Barbara B. Biesecker, Kyle B. Brothers, Flavia Chen, Benyam Hailu, Lucia A. Hindorff, Hannah Hoban, Rebecca L. Hsu, Sara J. Knight, Barbara A. Koenig, Katie L. Lewis, Kristen Hassmiller Lich, Julianne M. O’Daniel, Sonia Okuyama, Gail E. Tomlinson, Margaret Waltz, Benjamin S. Wilfond, Sara L. Ackerman, Mary A. Majumder
Publikováno v:
Journal of Clinical and Translational Science, Vol 5 (2021)
Abstract Introduction: Ensuring equitable access to health care is a widely agreed-upon goal in medicine, yet access to care is a multidimensional concept that is difficult to measure. Although frameworks exist to evaluate access to care generally,
Externí odkaz:
https://doaj.org/article/4a556b8b5aff4fabb66544725cf2bc0b
Autor:
Hadley Stevens Smith, Emily S. Bonkowski, Raymond Belanger Deloge, Amanda M. Gutierrez, Alva M. Recinos, Tara A. Lavelle, David L. Veenstra, Amy L. McGuire, Stacey Pereira
Publikováno v:
European Journal of Human Genetics. 31:445-452
Autor:
Amanda M. Gutierrez, Jill O. Robinson, Robin Raesz-Martinez, Isabel Canfield, Mary A. Majumder, Sarah Scollon, Lauren R. Desrosiers, Rebecca L. Hsu, Wendy Allen-Rhoades, D. Williams Parsons, Sharon E. Plon, Amy L. McGuire, Janet Malek
Publikováno v:
Journal of adolescent and young adult oncology.
Publikováno v:
Health Communication. :1-11
Managing the information needs of diverse populations through accessible, high-quality, and evidence-based health communication is critical to controlling the COVID-19 pandemic. Access to comprehensive information is especially important for the25 mi
Publikováno v:
Journal of Racial and Ethnic Health Disparities.
The COVID-19 pandemic has brought new urgency to a longstanding problem: the US health system is not well-equipped to accommodate the country's large limited English proficient (LEP) population in times of national emergency. We examined the landscap
Autor:
Stacey Pereira, Jill Oliver Robinson, Hayley A Peoples, Amanda M Gutierrez, Mary A Majumder, Amy L McGuire, Mark A Rothstein
Publikováno v:
PLoS ONE, Vol 12, Iss 9, p e0184525 (2017)
The importance of health privacy protections in the era of the "Facebook Generation" has been called into question. The ease with which younger people share personal information about themselves has led to the assumption that they are less concerned
Externí odkaz:
https://doaj.org/article/9697ba5596694554a5eb769785d14117
Autor:
Stacey, Pereira, Amanda M, Gutierrez, Jill Oliver, Robinson, Kurt D, Christensen, Casie A, Genetti, Carrie L, Blout Zawatsky, Rebecca L, Hsu, Bethany, Zettler, Melissa Kurtz, Uveges, Richard B, Parad, Alan H, Beggs, Ingrid A, Holm, Robert C, Green, Amy L, McGuire
Publikováno v:
Genetics in Medicine. 25:100002
Most professional guidelines recommend against genetic screening for adult-onset only conditions until adulthood, yet others argue there may be benefit to disclosing such results. We explored parents' decision-making on this issue in the BabySeq Proj
Autor:
Zoë P. Mackay, Dmitry Dukhovny, Kathryn A. Phillips, Alan H. Beggs, Robert C. Green, Richard B. Parad, Kurt D. Christensen, Pankaj B. Agrawal, Ozge Ceyhan-Birsoy, Shawn Fayer, Leslie A. Frankel, Casie A. Genetti, Amanda M. Gutierrez, Maegan Harden, Ingrid A. Holm, Joel B. Krier, Matthew S. Lebo, Kalotina Machini, Amy L. McGuire, Medha Naik, Tiffany T. Nguyen, Stacey Pereira, Vivek Ramanathan, Heidi L. Rehm, Amy Roberts, Jill O. Robinson, Sergei Roumiantsev, Talia S. Schwartz, Tina K. Truong, Grace E. VanNoy, Susan E. Waisbren, Timothy W. Yu
Publikováno v:
Value Health
Objectives The challenges of understanding how interventions influence follow-up medical care are magnified during genomic testing because few patients have received it to date and because the scope of information it provides is complex and often une