Patient and Stakeholder Engagement in the PCORI Pilot Projects: Description and Lessons Learned

Autor: Raj Sabharwal, Laura P. Forsythe, Kristen Konopka, Alison Rein, Lori Frank, Lauren Ellis, Lauren Edmundson

Publikováno v: Journal of General Internal Medicine

BACKGROUND Patients and healthcare stakeholders are increasingly becoming engaged in the planning and conduct of biomedical research. However, limited research characterizes this process or its impact. OBJECTIVE We aimed to characterize patient and s

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::08e242a946309f0c94954ddec92ccfe6
https://doi.org/10.1007/s11606-015-3450-z

Patient Engagement and Activation in Three Underserved Beacon Communities

Autor: Scott A Turske, Susan Hashisaka, Terrisca R. Des Jardins, Abigail A. Schachter, Shenetta A Drone, Alison Rein, Susan B Hunt, Kimberly Massey, Jobyna Hazzard

Publikováno v: Journal of Health Care for the Poor and Underserved. 26:777-783

Whether the setting is urban, rural, or somewhere in between, engagement strategies for the underserved require a great deal of flexibility and sensitivity to the socioeconomic, cultural, and geographic conditions of the patient population. The follo

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::37efdc2827d6794e3606592790ff3115
https://doi.org/10.1353/hpu.2015.0084

Finding 'truth' across different data sources

Autor: Alison Rein, Lisa Simpson

Publikováno v: Israel Journal of Health Policy Research

Background Cancer survivorship has increasingly become the focus of research due to progress in early detection and advancements in the therapeutic approach, but high-quality information sources for outcomes, potential confounders and personal charac

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f5cc45948bc22ff8203e681ac9176be9
https://pubmed.ncbi.nlm.nih.gov/27980719

Making It Local: Beacon Communities Use Health Information Technology to Optimize Care Management

Autor: Barbara Sorondo, Alison Rein, Lee McWilliams, Ranjit Singh, David F. Lobach, Abigail A. Schachter, Terrisca R. Des Jardins, Amy Allen, Jennifer M. Polello, Arvela R Heider, Chatrian R. Kanger, Megan C. Tulikangas, Scott A Turske

Care management aims to provide cost-effective, coordinated, non-duplicative care to improve care quality, population health, and reduce costs. The 17 communities receiving funding from the Office of the National Coordinator for Health Information Te

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b84213bd135c795c4a73fb2de94c2a6e
https://europepmc.org/articles/PMC4050715/

Data Governance and Data Sharing Agreements for Community-Wide Health Information Exchange: Lessons from the Beacon Communities

Autor: Joan Topper, Scott A Turske, Terrisca R. Des Jardins, Abigail A. Schachter, Lee McWilliams, Barbara Sorondo, Ranjit Singh, Kristin A. Lyman, Arvela R Heider, Claudia Allen, Alison Rein

Publikováno v: eGEMs (Generating Evidence & Methods to improve patient outcomes); Vol 2, No 1 (2014); 5
EGEMS
eGEMs, Vol 2, Iss 1 (2014)

Purpose: Unprecedented efforts are underway across the United States to electronically capture and exchange health information to improve health care and population health, and reduce costs. This increased collection and sharing of electronic patient

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e1b3d1c0398ef080ab72448967c39e46
https://egems.academyhealth.org/jms/article/view/36