Zobrazeno 1 - 10
of 50
pro vyhledávání: '"Alexia Marrel"'
Autor:
Anne-Sophie Michel, Paul Kamudoni, Alexia Marrel, Rocco Adiutori, Céline Desvignes-Gleizes, Sally Lanar, Peter Schache, Erica Spies, Josephine Park
Publikováno v:
Frontiers in Medicine, Vol 10 (2023)
ObjectiveIncluding qualitative research in clinical trial design is an innovative approach to understanding patients’ perspective and incorporate the patient’s voice in all stages of drug development and evaluation. This review aims to explore cu
Externí odkaz:
https://doaj.org/article/46bd236ceb9d42c5bc1ec0acb05df5a6
Autor:
Simon Renner, Paul Loussikian, Pierre Foulquié, Alexia Marrel, Valentin Barbier, Adel Mebarki, Stéphane Schück, Murtuza Bharmal
Publikováno v:
JMIR Cancer, Vol 9, p e45011 (2023)
BackgroundIn 2022, it was estimated that more than 80,000 new cases of bladder cancer (BC) were diagnosed in the United States, 12% of which were locally advanced or metastatic BC (advanced BC). These forms of cancer are aggressive and have a poor pr
Externí odkaz:
https://doaj.org/article/c9888e811c2d41889210d75c5eb98432
Autor:
Michaël Acquadro, Alexia Marrel, Maria A. Manso-Silván, Catherine Guittet, Sophie Joukoff, Aurélia Bertholet-Thomas
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-8 (2022)
Abstract Background Consequences of distal renal tubular acidosis (dRTA) on growth, bone and kidney, sometimes associated with hearing loss, may significantly affect quality of life (QoL). This descriptive qualitative study explores QoL linked to dRT
Externí odkaz:
https://doaj.org/article/414cef9ae7f847e5ab5de297029975e9
Autor:
Sally Lanar, Samantha Parker, Cara O’Neill, Alexia Marrel, Benoit Arnould, Bénédicte Héron, Nicole Muschol, Frits A. Wijburg, Anupam Chakrapani, Sophie Olivier, Karen Aiach
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-11 (2022)
Abstract Background MPS IIIA is a rare, degenerative pediatric genetic disease characterized by symptoms impacting cognition, mobility and behavior; the mean age of death is around 15 years of age. Currently, there are no approved therapies for MPS I
Externí odkaz:
https://doaj.org/article/13f5855d754b4424a5c8cc19369ada71
Autor:
Simon Renner, Paul Loussikian, Pierre Foulquié, Benoit Arnould, Alexia Marrel, Valentin Barbier, Adel Mebarki, Stéphane Schück, Murtuza Bharmal
Publikováno v:
JMIR Cancer, Vol 8, Iss 3, p e37518 (2022)
BackgroundLocally advanced or metastatic bladder cancer (BC), which is generally termed advanced BC (aBC), has a very poor prognosis, and in addition to its physical symptoms, it is associated with emotional and social challenges. However, few studie
Externí odkaz:
https://doaj.org/article/45a401fef93b44d39034c6d25f0b3fa7
Autor:
Murtuza Bharmal, Isabelle Guillemin, Alexia Marrel, Benoit Arnould, Jérémy Lambert, Meliessa Hennessy, Fatoumata Fofana
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 13, Iss 1, Pp 1-10 (2018)
Abstract Background Demonstrating treatment benefits within clinical trials in the context of rare diseases is often methodologically and practically challenging. Mixed methods research offers an approach to overcome these challenges by combining qua
Externí odkaz:
https://doaj.org/article/bcde5692cb2e4751a7dc376ed31a1121
Autor:
James Weatherall, William H. Polonsky, Sally Lanar, Naomi Knoble, Jonas Håkan-Bloch, Elisabeth Constam, Athena Philis-Tsimikas, Alexia Marrel
Publikováno v:
Health and Quality of Life Outcomes, Vol 16, Iss 1, Pp 1-7 (2018)
Abstract Background Anecdotal reports suggest that insulin degludec (IDeg) may offer unique health-related quality of life (HRQoL) benefits. As the nature of these benefits remain unclear, this study utilized qualitative research methods to investiga
Externí odkaz:
https://doaj.org/article/d44be675707c4af8869ba1f2c1ea8ffb
Autor:
Murtuza Bharmal, Fatoumata Fofana, Carla Dias Barbosa, Paul Williams, Lisa Mahnke, Alexia Marrel, Michael Schlichting
Publikováno v:
Health and Quality of Life Outcomes, Vol 15, Iss 1, Pp 1-11 (2017)
Abstract Background No validated disease-specific questionnaires exist to capture health-related quality of life (HRQoL) in patients with Merkel cell carcinoma (MCC). The Functional Assessment of Cancer Therapy – Melanoma (FACT-M) is validated in p
Externí odkaz:
https://doaj.org/article/4bc18a7a3a33402a9657a8dbbe9ec17e
Autor:
Murtuza Bharmal, Fatoumata Fofana, Carla Dias Barbosa, Paul Williams, Lisa Mahnke, Alexia Marrel, Michael Schlichting
Publikováno v:
Health and Quality of Life Outcomes, Vol 17, Iss 1, Pp 1-2 (2019)
Externí odkaz:
https://doaj.org/article/1da36c71990f40cc915e83fef5dc2ff4
Autor:
Simon Renner, Paul Loussikian, Pierre Foulquié, Alexia Marrel, Valentin Barbier, Adel Mebarki, Stéphane Schück, Murtuza Bharmal
BACKGROUND In 2022, it was estimated that more than 80,000 new cases of bladder cancer (BC) were diagnosed in the United States, 12% of which were locally advanced or metastatic BC (advanced BC). These forms of cancer are aggressive and have a poor p
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::2ab13e5f9c06ed51b3df332cc73cdf25
https://doi.org/10.2196/preprints.45011
https://doi.org/10.2196/preprints.45011