Zobrazeno 1 - 10
of 46
pro vyhledávání: '"Alexander Bernier"'
Autor:
Maria del Carmen Sanchez Gonzalez, Pim Kamerling, Mariapia Iermito, Sara Casati, Umar Riaz, Colin D. Veal, Monika Maini, Francis Jeanson, Oussama Mohammed Benhamed, Esther van Enckevort, Annalisa Landi, Yanis Mimouni, Clèmence Le Cornec, Domenico A. Coviello, Tiziana Franchin, Francesca Fusco, Jose Antonio Ramírez García, Loes F. M. van der Zanden, Alexander Bernier, Mark D. Wilkinson, Heimo Mueller, Spencer J. Gibson, Anthony J. Brookes
Publikováno v:
Scientific Data, Vol 11, Iss 1, Pp 1-9 (2024)
Abstract Myriad policy, ethical and legal considerations underpin the sharing of biological resources, implying the need for standardised and yet flexible ways to digitally represent diverse ‘use conditions’. We report a core lexicon of terms tha
Externí odkaz:
https://doaj.org/article/3cd0a77575224477a1b37c38c5f449a9
Autor:
Francis Jeanson, Spencer J. Gibson, Pinar Alper, Alexander Bernier, J. Patrick Woolley, Daniel Mietchen, Andrzej Strug, Regina Becker, Pim Kamerling, Maria del Carmen Sanchez Gonzalez, Nancy Mah, Ann Novakowski, Mark D. Wilkinson, Oussama Mohammed Benhamed, Annalisa Landi, Georg Philip Krog, Heimo Müller, Umar Riaz, Colin Veal, Petr Holub, Esther van Enckevort, Anthony J. Brookes
Publikováno v:
Scientific Data, Vol 11, Iss 1, Pp 1-10 (2024)
Abstract Improving patient care and advancing scientific discovery requires responsible sharing of research data, healthcare records, biosamples, and biomedical resources that must also respect applicable use conditions. Defining a standard to struct
Externí odkaz:
https://doaj.org/article/de59fedfa1204b5cab7a3ced4c25537e
Publikováno v:
Big Data & Society, Vol 10 (2023)
Health organisations use numerous different mechanisms to collect biomedical data, to determine the applicable ethical, legal and institutional conditions of use, and to reutilise the data in accordance with the relevant rules. These methods and mech
Externí odkaz:
https://doaj.org/article/975804e3ba654781a14ec7708a9326c7
Autor:
Fruzsina Molnár-Gábor, Michael J S Beauvais, Alexander Bernier, Maria Pilar Nicolas Jimenez, Mikel Recuero, Bartha Maria Knoppers
Publikováno v:
Journal of Medical Internet Research, Vol 24, Iss 10, p e37236 (2022)
In this viewpoint, we argue for the importance of creating data spaces for genomic research that are detached from contexts in which fundamental rights concerns related to surveillance measures override a purpose-specific balancing of fundamental rig
Externí odkaz:
https://doaj.org/article/dcec03e89f6f40bab02ae52f391721e7
Publikováno v:
Nature Communications, Vol 12, Iss 1, Pp 1-3 (2021)
In this opinion piece, we discuss why computational tools to limit the identifiability of genomic data are a promising avenue for privacy-preservation and legal compliance. Even where these technologies do not eliminate all residual risk of individua
Externí odkaz:
https://doaj.org/article/042e5e2b86a747b5a4ba90e724c1b108
Autor:
Alexander Bernier
Publikováno v:
FACETS, Vol 5, Iss 1, Pp 836-863 (2020)
The Canadian Genomics Partnership for Rare Diseases, spearheaded by Genome Canada, will integrate genome-wide sequencing to rare disease clinical care in Canada. Centralized and tiered models of data stewardship are proposed to ensure that the data g
Externí odkaz:
https://doaj.org/article/99916a458bf54198bcb217be66081bc3
Autor:
Heidi L. Rehm, Angela J.H. Page, Lindsay Smith, Jeremy B. Adams, Gil Alterovitz, Lawrence J. Babb, Maxmillian P. Barkley, Michael Baudis, Michael J.S. Beauvais, Tim Beck, Jacques S. Beckmann, Sergi Beltran, David Bernick, Alexander Bernier, James K. Bonfield, Tiffany F. Boughtwood, Guillaume Bourque, Sarion R. Bowers, Anthony J. Brookes, Michael Brudno, Matthew H. Brush, David Bujold, Tony Burdett, Orion J. Buske, Moran N. Cabili, Daniel L. Cameron, Robert J. Carroll, Esmeralda Casas-Silva, Debyani Chakravarty, Bimal P. Chaudhari, Shu Hui Chen, J. Michael Cherry, Justina Chung, Melissa Cline, Hayley L. Clissold, Robert M. Cook-Deegan, Mélanie Courtot, Fiona Cunningham, Miro Cupak, Robert M. Davies, Danielle Denisko, Megan J. Doerr, Lena I. Dolman, Edward S. Dove, L. Jonathan Dursi, Stephanie O.M. Dyke, James A. Eddy, Karen Eilbeck, Kyle P. Ellrott, Susan Fairley, Khalid A. Fakhro, Helen V. Firth, Michael S. Fitzsimons, Marc Fiume, Paul Flicek, Ian M. Fore, Mallory A. Freeberg, Robert R. Freimuth, Lauren A. Fromont, Jonathan Fuerth, Clara L. Gaff, Weiniu Gan, Elena M. Ghanaim, David Glazer, Robert C. Green, Malachi Griffith, Obi L. Griffith, Robert L. Grossman, Tudor Groza, Jaime M. Guidry Auvil, Roderic Guigó, Dipayan Gupta, Melissa A. Haendel, Ada Hamosh, David P. Hansen, Reece K. Hart, Dean Mitchell Hartley, David Haussler, Rachele M. Hendricks-Sturrup, Calvin W.L. Ho, Ashley E. Hobb, Michael M. Hoffman, Oliver M. Hofmann, Petr Holub, Jacob Shujui Hsu, Jean-Pierre Hubaux, Sarah E. Hunt, Ammar Husami, Julius O. Jacobsen, Saumya S. Jamuar, Elizabeth L. Janes, Francis Jeanson, Aina Jené, Amber L. Johns, Yann Joly, Steven J.M. Jones, Alexander Kanitz, Kazuto Kato, Thomas M. Keane, Kristina Kekesi-Lafrance, Jerome Kelleher, Giselle Kerry, Seik-Soon Khor, Bartha M. Knoppers, Melissa A. Konopko, Kenjiro Kosaki, Martin Kuba, Jonathan Lawson, Rasko Leinonen, Stephanie Li, Michael F. Lin, Mikael Linden, Xianglin Liu, Isuru Udara Liyanage, Javier Lopez, Anneke M. Lucassen, Michael Lukowski, Alice L. Mann, John Marshall, Michele Mattioni, Alejandro Metke-Jimenez, Anna Middleton, Richard J. Milne, Fruzsina Molnár-Gábor, Nicola Mulder, Monica C. Munoz-Torres, Rishi Nag, Hidewaki Nakagawa, Jamal Nasir, Arcadi Navarro, Tristan H. Nelson, Ania Niewielska, Amy Nisselle, Jeffrey Niu, Tommi H. Nyrönen, Brian D. O’Connor, Sabine Oesterle, Soichi Ogishima, Vivian Ota Wang, Laura A.D. Paglione, Emilio Palumbo, Helen E. Parkinson, Anthony A. Philippakis, Angel D. Pizarro, Andreas Prlic, Jordi Rambla, Augusto Rendon, Renee A. Rider, Peter N. Robinson, Kurt W. Rodarmer, Laura Lyman Rodriguez, Alan F. Rubin, Manuel Rueda, Gregory A. Rushton, Rosalyn S. Ryan, Gary I. Saunders, Helen Schuilenburg, Torsten Schwede, Serena Scollen, Alexander Senf, Nathan C. Sheffield, Neerjah Skantharajah, Albert V. Smith, Heidi J. Sofia, Dylan Spalding, Amanda B. Spurdle, Zornitza Stark, Lincoln D. Stein, Makoto Suematsu, Patrick Tan, Jonathan A. Tedds, Alastair A. Thomson, Adrian Thorogood, Timothy L. Tickle, Katsushi Tokunaga, Juha Törnroos, David Torrents, Sean Upchurch, Alfonso Valencia, Roman Valls Guimera, Jessica Vamathevan, Susheel Varma, Danya F. Vears, Coby Viner, Craig Voisin, Alex H. Wagner, Susan E. Wallace, Brian P. Walsh, Marc S. Williams, Eva C. Winkler, Barbara J. Wold, Grant M. Wood, J. Patrick Woolley, Chisato Yamasaki, Andrew D. Yates, Christina K. Yung, Lyndon J. Zass, Ksenia Zaytseva, Junjun Zhang, Peter Goodhand, Kathryn North, Ewan Birney
Publikováno v:
Cell Genomics, Vol 1, Iss 2, Pp 100029- (2021)
Summary: The Global Alliance for Genomics and Health (GA4GH) aims to accelerate biomedical advances by enabling the responsible sharing of clinical and genomic data through both harmonized data aggregation and federated approaches. The decreasing cos
Externí odkaz:
https://doaj.org/article/8843ca96b8394774b7bfa2e49aa0584a
Autor:
Thijs Devriendt, Clemens Ammann, Folkert W. Asselbergs, Alexander Bernier, Rodrigo Costas, Matthias G. Friedrich, Josep L. Gelpi, Marjo-Riitta Jarvelin, Kari Kuulasmaa, Karim Lekadir, Michaela Th. Mayrhofer, Vaclav Papez, Gerard Pasterkamp, Steffen E. Petersen, Carsten Oliver Schmidt, Jeanette Schulz-Menger, Stefan Söderberg, Mahsa Shabani, Giovanni Veronesi, Darian Steven Viezzer, Pascal Borry
Publikováno v:
Open Research Europe, Vol 1 (2021)
Various data sharing platforms are being developed to enhance the sharing of cohort data by addressing the fragmented state of data storage and access systems. However, policy challenges in several domains remain unresolved. The euCanSHare workshop w
Externí odkaz:
https://doaj.org/article/4e0a73b2dc8240bbb2c1deae52ecd943
Autor:
Thijs Devriendt, Clemens Ammann, Folkert W. Asselberghs, Alexander Bernier, Rodrigo Costas, Matthias G. Friedrich, Josep L. Gelpi, Marjo-Riitta Jarvelin, Kari Kuulasmaa, Karim Lekadir, Michaela Th. Mayrhofer, Vaclav Papez, Gerard Pasterkamp, Steffen E. Petersen, Carsten Oliver Schmidt, Jeanette Schulz-Menger, Stefan Söderberg, Mahsa Shabani, Giovanni Veronesi, Darian Steven Viezzer, Pascal Borry
Publikováno v:
Open Research Europe, Vol 1 (2021)
Various data sharing platforms are being developed to enhance the sharing of cohort data by addressing the fragmented state of data storage and access systems. However, policy challenges in several domains remain unresolved. The euCanSHare workshop w
Externí odkaz:
https://doaj.org/article/96b70ff01688411e81254f39b63978ba
Autor:
Claire C. Austin, Alexander Bernier, Louise Bezuidenhout, Juan Bicarregui, Timea Biro, Anne Cambon-Thomsen, Stephanie Russo Carroll, Zoe Cournia, Piotr Wojciech Dabrowski, Gayo Diallo, Thomas Duflot, Leyla Garcia, Sandra Gesing, Alejandra Gonzalez-Beltran, Anupama Gururaj, Natalie Harrower, Dawei Lin, Claudia Medeiros, Eva Méndez, Natalie Meyers, Daniel Mietchen, Rajini Nagrani, Gustav Nilsonne, Simon Parker, Brian Pickering, Amy Pienta, Panayiota Polydoratou, Fotis Psomopoulos, Stephanie Rennes, Robyn Rowe, Susanna-Assunta Sansone, Hugh Shanahan, Lina Sitz, Joanne Stocks, Marcos Roberto Tovani-Palone, Mary Uhlmansiek, Research Data Alliance
Publikováno v:
Wellcome Open Research, Vol 5 (2021)
The systemic challenges of the COVID-19 pandemic require cross-disciplinary collaboration in a global and timely fashion. Such collaboration needs open research practices and the sharing of research outputs, such as data and code, thereby facilitatin
Externí odkaz:
https://doaj.org/article/32d40ce0906c467db3012733dc1c72fa