Precision Medicine and Advancing Genetic Technologies—Disability and Human Rights Perspectives

Autor: Aisling de Paor, Peter Blanck

Publikováno v: Laws, Vol 5, Iss 3, p 36 (2016)

Scientific and technological developments are propelling genetics and genetic technologies into the public sphere. Scientific and technological innovation is becoming more refined, resulting in an increase in the availability and use of genetic testi

Externí odkaz: https://doaj.org/article/1cccc0c982244c4f8966707a12c97b8e

Anti-SelectionGenetic Testing in Insurance: An Interdisciplinary Perspective

Autor: Dexter Golinghorst, Aisling de Paor, Yann Joly, Angus S. Macdonald, Margaret Otlowski, Richard Peter, Anya E.R. Prince

Publikováno v: The Journal of law, medicineethics : a journal of the American Society of Law, MedicineEthics. 50(1)

Anti-selection occurs when information asymmetry exists between insurers and applicants. When an applicant knows they are at high risk of loss, but the insurer does not, the applicant may try to use this knowledge differential to secure insurance at

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a45f14d710618955d154480045050c9c
https://pubmed.ncbi.nlm.nih.gov/35243990

The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination

Autor: Calvin W. L. Ho, Michael S. Pepper, Edward S. Dove, Timo Minssen, Katherine Huerne, Margaret Otlowski, Yvonne Bombard, Aisling de Paor, Palmira Granados Moreno, Gratien Dalpé, Torsten Heinemann, Ma'n H. Zawati, Katharina Ó Cathaoir, Ine Van Hoyweghen, Hannah Kim, Robert Sladek, Anya E.R. Prince, Lingqiao Song, Chih-hsing Ho, Mykhailo Arych, Yann Joly, Audrey Lebret, Athira P.S. Nair

Publikováno v: Joly, Y, Huerne, K, Arych, M, Bombard, Y, Dove, E, Granados Moreno, P, Ho, C, Van Hoyweghen, I, Kim, H, Lebret, A, Minssen, T, Ó Cathaoir, K, Prince, A, Otlowski, M, Pepper, M S, Sladek, R, Song, L, Voight, T, Zawati, M H & Dalpe, G 2021, ' The Genetic Discrimination Observatory: Confronting Novel Issues in Genetic Discrimination ', Trends in Genetics, vol. 37, no. 11, pp. 951-954 . https://doi.org/10.1016/j.tig.2021.08.004

Genetic discrimination can be defined as the differential, negative, treatment or unfair profiling of an individual based on presumed or actual genetic characteristics or on omics data. In the face of rapidly developing omics and data-driven technolo

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::6eedd24c0ef0effbdd6b862e77e8a6eb
https://pubmed.ncbi.nlm.nih.gov/34503867

Genetic Risks and Doctors’ Disclosure Obligations — Revisiting the Duty of Confidentiality

Autor: Aisling de Paor

Publikováno v: European Journal of Health Law. 25:365-388

With developments in the field of genetics, new technologies such as genetic testing are fast emerging. Although offering unparalleled opportunities, these developments raise many ethical, legal and other issues. One challenge relates to the duty of

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::155166a2814190950bcfb4bc1dae474e
https://doi.org/10.1163/15718093-12252373

Genetic Discrimination: A Case for a European Legislative Response?

Autor: Aisling de Paor

Publikováno v: European Journal of Health Law. 24:135-159

With rapid scientific and technological advances, a new genetic era is emerging. However, these advances raise ethical and legal issues, particularly genetic discrimination, that may threaten advancing science in the absence of appropriate regulation

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::824122b517cfb048f4418f1651b1438a
https://doi.org/10.1163/15718093-12453366