One third of physicians discuss exit strategies with patients with amyotrophic lateral sclerosis: Results from nationwide surveys among German and Polish neurologists.

Autor: Barć K; Department of Neurology, University Clinical Centre of Medical University of Warsaw, Warsaw, Poland., Finsel J; Department of Neurology, University of Ulm, Ulm, Germany., Helczyk O; Department of Neurology, University of Ulm, Ulm, Germany., Baader S; Department of Neurology, University of Ulm, Ulm, Germany., Aho-Özhan H; Department of Neurology, University of Ulm, Ulm, Germany., Ludolph AC; Department of Neurology, University of Ulm, Ulm, Germany.; German Centre of Neurodegenerative Diseases (DZNE), Ulm, Germany., Lulé D; Department of Neurology, University of Ulm, Ulm, Germany., Kuźma-Kozakiewicz M; Department of Neurology, Medical University of Warsaw, Warsaw, Poland.; Neurodegenerative Diseases Research Group, Medical University of Warsaw, Warsaw, Poland.

Publikováno v: Brain and behavior [Brain Behav] 2024 Jan 06; Vol. 14 (2), pp. e3243. Date of Electronic Publication: 2024 Jan 06.

Understanding Quality of Life for People with Motor Neurone Disease Who Use Tracheostomy Ventilation and Family Members: A Scoping Review.

Autor: Turner, Nicola¹ (AUTHOR) eleanor.wilson@nottingham.ac.uk, Faull, Christina² (AUTHOR) christinafaull@loros.co.uk, Palmer, Jonathan³ (AUTHOR) jonathanpalmer@nhs.net, Armstrong, Alison⁴ (AUTHOR) alison.armstrong1@nhs.net, Bedford, Jennifer⁵ (AUTHOR) jennifer.bedford@mndassociation.org, Turner, Martin R.⁶ (AUTHOR) martin.turner@ndcn.ox.ac.uk, Wilson, Eleanor¹ (AUTHOR)

Publikováno v: Brain Sciences (2076-3425). Aug2024, Vol. 14 Issue 8, p821. 14p.

Cognitive phenotypes of sequential staging in amyotrophic lateral sclerosis.

Autor: Lulé D; University of Ulm, Department of Neurology, Germany. Electronic address: dorothee.lule@uni-ulm.de., Böhm S; University of Ulm, Department of Neurology, Germany., Müller HP; University of Ulm, Department of Neurology, Germany., Aho-Özhan H; University of Ulm, Department of Neurology, Germany., Keller J; University of Ulm, Department of Neurology, Germany., Gorges M; University of Ulm, Department of Neurology, Germany., Loose M; University of Ulm, Department of Neurology, Germany., Weishaupt JH; University of Ulm, Department of Neurology, Germany., Uttner I; University of Ulm, Department of Neurology, Germany., Pinkhardt E; University of Ulm, Department of Neurology, Germany., Kassubek J; University of Ulm, Department of Neurology, Germany., Del Tredici K; University of Ulm, Department of Neurology, Germany., Braak H; University of Ulm, Department of Neurology, Germany., Abrahams S; Human Cognitive Neuroscience Unit, Euan MacDonald Centre for Motor Neuron Disease Research & Anne Rowling Regenerative Neurology Clinic, University of Edinburgh, UK., Ludolph AC; University of Ulm, Department of Neurology, Germany.

Publikováno v: Cortex; a journal devoted to the study of the nervous system and behavior [Cortex] 2018 Apr; Vol. 101, pp. 163-171. Date of Electronic Publication: 2018 Jan 31.

Age and education-matched cut-off scores for the revised German/Swiss-German version of ECAS.

Autor: Loose M; a Department of Neurology , Ulm University , Germany ., Burkhardt C; b Kantonsspital St. Gallen, Neuromuscular Disease Centre/ALS Clinic , Switzerland ., Aho-Özhan H; a Department of Neurology , Ulm University , Germany ., Keller J; a Department of Neurology , Ulm University , Germany ., Abdulla S; c Department of Neurology , Hanover Medical School .; d Department of Neurology , Otto-von-Guericke University Magdeburg, Magdeburg, and German Centre for Neurodegenerative Diseases , Magdeburg , Germany , and., Böhm S; a Department of Neurology , Ulm University , Germany ., Kollewe K; c Department of Neurology , Hanover Medical School ., Uttner I; a Department of Neurology , Ulm University , Germany ., Abrahams S; e Psychology-PPLS, Euan MacDonald Centre for Motor Neuron Disease Research & Anne Rowling Regenerative Neurology Clinic, University of Edinburgh , UK., Petri S; c Department of Neurology , Hanover Medical School ., Weber M; b Kantonsspital St. Gallen, Neuromuscular Disease Centre/ALS Clinic , Switzerland ., Ludolph AC; a Department of Neurology , Ulm University , Germany ., Lulé D; a Department of Neurology , Ulm University , Germany .

Publikováno v: Amyotrophic lateral sclerosis & frontotemporal degeneration [Amyotroph Lateral Scler Frontotemporal Degener] 2016 Jul-Aug; Vol. 17 (5-6), pp. 374-6. Date of Electronic Publication: 2016 Mar 30.

Determining impairment in the Swedish, Polish and German ECAS: the importance of adjusting for age and education.

Autor: Finsel, Julia¹ (AUTHOR), Winroth, Ivar² (AUTHOR), Ciećwierska, Katarzyna³ (AUTHOR), Helczyk, Olga¹ (AUTHOR), Stenberg, Erica A.² (AUTHOR), Häggström, Ann-Christin² (AUTHOR), Ludolph, Albert C.¹ (AUTHOR), Uttner, Ingo¹ (AUTHOR), Semb, Olof⁴ (AUTHOR), Pilczuk, Beata³ (AUTHOR), Szejko, Natalia^3,4 (AUTHOR), Rosentul, Simona⁵ (AUTHOR), Lulé, Dorothée¹ (AUTHOR), Kuźma-Kozakiewicz, Magdalena^3,6,7 (AUTHOR), Andersen, Peter M.² (AUTHOR)

Publikováno v: Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration. Aug2023, Vol. 24 Issue 5/6, p475-484. 10p.