Support Needs of Patients with Cushing’s Disease and Cushing’s Syndrome: Results of a Survey Conducted in Germany and the USA

Autor: Ilonka Kreitschmann-Andermahr, Sonja Siegel, Christa Gammel, Karen Campbell, Leslie Edwin, Agnieszka Grzywotz, Victoria Kuhna, Maria Koltowska-Häggström, Oliver Müller, Michael Buchfelder, Bernadette Kleist

Publikováno v: International Journal of Endocrinology, Vol 2018 (2018)

Background. Cushing’s disease (CD) and Cushing’s syndrome (CS) are chronic illnesses, characterized by symptoms of prolonged hypercortisolism, which often changes to hypocortisolism after successful treatment. In view of the high disease burden o

Externí odkaz: https://doaj.org/article/055fa52dbf4046a696ef0419d9190e51

Contributors

Autor: Adriana Albani, Luigi Albano, Thiago Albonette-Felicio, Krystallenia I. Alexandraki, Ali Alomari, Natasha M. Appelman-Dijkstra, John R. Apps, Anna Aulinas, Garni Barkhoudarian, Lina Raffaella Barzaghi, Waiel Bashari, Benjamin Bender, Martin Bidlingmaier, Nienke R. Biermasz, Marcello D. Bronstein, Michael Buchfelder, Rolf Buslei, Ricardo L. Carrau, Philippe Chanson, Mirjam Christ-Crain, Kim M.J.A. Claessen, Aaron A. Cohen-Gadol, Jens Conrad, Alex Corlin, Sherwin Criseno, Olaf M. Dekkers, Donald K. Detchou, Timo Deutschbein, Christina Dimopoulou, Vincent Dodson, Michal Ehrenwald, Ulf Elbelt, Jean Anderson Eloy, Daniela Esposito, Melissa Fischer, Maria Fleseriu, Jörg Flitsch, Athanasios Fountas, Merav Fraenkel, Stefano Frara, Rüdiger Gerlach, Sabrina Giese, Daniel Gillett, Andrea Giustina, Andrea Glezer, Yona Greenman, Ashley Grossman, Rachel Grossman, Anca-Ligia Grosu, Agnieszka Grzywotz, Mark Gurnell, Angelika Gutenberg, Ross Hamblin, Christina Hayes, Anthony P. Heaney, Benjamin K. Hendricks, José Miguel Hinojosa-Amaya, Bernhard Hirt, Jürgen Honegger, Mirela Diana Ilie, Raquel S. Jallad, Gudmundur Johannsson, Emmanuel Jouanneau, Caroline Jung-Sievers, Niki Karavitaki, Daniel F. Kelly, Alan Kelsall, Ulrich J. Knappe, Arend Koch, Ilonka Kreitschmann-Andermahr, Sebastian Küchlin, Sarah Kullman, Wolf Alexander Lagrèze, Chloe Y. Li, Dror Limon, Michael Linetsky, Kirstie Lithgow, James K. Liu, Sofia Llahana, Marco Losa, Anton Luger, James MacFarlane, Marcio C. Machado, Luigi Maione, Juan Pedro Martinez-Barbera, Ma Antonia Martínez-Momblán, Rafael Martinez-Perez, Shirley McCartney, Klaus C. Mende, Pietro Mortini, Hermann L. Müller, Isabella Nasi-Kordhishti, John Newell-Price, Nils Henrik Nicolay, Tobias Pantel, Alberto M. Pereira, Stephan Petersenn, Daniel M. Prevedello, Oskar Ragnarsson, Redi Rahmani, Gérald Raverot, Michal Raz, Eugenia Resmini, Wolfgang Saeger, Alicia Santos, Marie Helene Schernthaner-Reiter, Katharina Schilbach, Sven-Martin Schlaffer, Jochen Schopohl, Henry W.S. Schroeder, Russell Senanayake, Ilan Shimon, Giuliano Silveira-Bertazzo, Ariadni Spyroglou, Sylvère Störmann, Jai Deep Thakur, Marily Theodoropoulou, Samuel B. Tomlinson, Elena Valassi, Elena V. Varlamov, G. Edward Vates, Greisa Vila, Susan M. Webb, Helmut Wilhelm, Peter Wolf, Yingying Yang, Yining Zhao

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::33ea12c30bbc018d9dd1b4fd79233a71
https://doi.org/10.1016/b978-0-12-819949-7.09993-5

Motivation for and adherence to growth hormone replacement therapy in adults with hypopituitarism : The patients‘ perspective

Autor: Heide Sommer, Ilonka Kreitschmann-Andermahr, Katharina Schilbach, Janina Sauerwald, Kathrin Zopf, Janine Szybowicz, Christine Streetz-van der Werf, Wolfram Karges, Bernadette Schröder, Nicole Unger, Agnieszka Grzywotz, Sonja Siegel, Martin Bidlingmaier, Christian J. Strasburger

Publikováno v: Pituitary

Introduction While reasons for non-adherence in children requiring growth hormone (GH) replacement (GH-Rx) are well researched, few studies have investigated adherence in adult GH deficient patients. Against the background of the adverse medical sequ

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4723bf659057d8fd6133040cab2b69a9
https://www.ncbi.nlm.nih.gov/pubmed/32441023

Pituitary apoplexy – A single center retrospective study from the neurosurgical perspective and review of the literature

Autor: Ulrich Sure, Agnieszka Grzywotz, Oliver Müller, Volkmar H. J. Hans, Bernadette Kleist, Sophia Göricke, Lars Möller, Ilonka Kreitschmann-Andermahr

Objective Thunderclap headache and visual disturbances are typical clinical features of pituitary apoplexy (PA). Because of the acute symptomatology, many patients are referred to a neurosurgical department without prior endocrinological assessment.

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2b44d4fe4c05825ba5660ae6b34346c4
https://www.scopus.com/inward/record.url?partnerID=HzOxMe3b&origin=inward&scp=85031806720