Zobrazeno 1 - 8
of 8
pro vyhledávání: '"Agnieszka Chrobot"'
Autor:
Dariusz Walkowiak, Bożena Mikołuć, Renata Mozrzymas, Łukasz Kałużny, Bożena Didycz, Dorota Korycińska-Chaaban, Michał Patalan, Joanna Jagłowska, Agnieszka Chrobot, Rafał Staszewski, Jarosław Walkowiak
Publikováno v:
Children, Vol 9, Iss 2, p 131 (2022)
The first pandemic lockdown dramatically impacted many aspects of everyday life, including healthcare systems. The purpose of this study was to identify problems of patients with phenylketonuria (PKU) and their parents/caregivers during that time. We
Externí odkaz:
https://doaj.org/article/35fe2e78352a4775a41059a4beac025f
Autor:
Ewa Witalis, Bozena Mikoluc, Radoslaw Motkowski, Jolanta Sawicka-Powierza, Agnieszka Chrobot, Bozena Didycz, Agata Lange, Renata Mozrzymas, Andrzej Milanowski, Maria Nowacka, Mariola Piotrowska-Depta, Hanna Romanowska, Ewa Starostecka, Jolanta Wierzba, Magdalena Skorniewska, Barbara Iwona Wojcicka-Bartlomiejczyk, Maria Gizewska, Halina Car, Polish Society of Phenylketonuria
Publikováno v:
Nutrition & Metabolism, Vol 14, Iss 1, Pp 1-9 (2017)
Abstract Background The aim of the study was to assess both patients’ and their parents’ knowledge of phenylketonuria (PKU) treatment and compliance with PKU diet. Methods The study included 173 PKU patients aged 10–19 and 110 parents of PKU ch
Externí odkaz:
https://doaj.org/article/48182e73f7b04605bbd559b13c49cfc8
Autor:
Dariusz Walkowiak, Bożena Mikołuć, Renata Mozrzymas, Łukasz Kałużny, Bożena Didycz, Dorota Korycińska-Chaaban, Michał Patalan, Joanna Jagłowska, Agnieszka Chrobot, Rafał Staszewski, Jarosław Walkowiak
Publikováno v:
Children; Volume 9; Issue 2; Pages: 131
The first pandemic lockdown dramatically impacted many aspects of everyday life, including healthcare systems. The purpose of this study was to identify problems of patients with phenylketonuria (PKU) and their parents/caregivers during that time. We
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::1a952c2e8577476f476b66874ca23131
https://pubmed.ncbi.nlm.nih.gov/35204852
https://pubmed.ncbi.nlm.nih.gov/35204852
Autor:
Jarosław Walkowiak, Michal Patalan, Łukasz Kałużny, Bozena Didycz, Bożena Mikołuć, Renata Mozrzymas, Dariusz Walkowiak, Ewa Starostecka, Dorota Korycinska-Chaaban, Joanna Zarębska, Agnieszka Chrobot, Joanna Jaglowska
Publikováno v:
International Journal of Environmental Research and Public Health
Volume 18
Issue 12
International Journal of Environmental Research and Public Health, Vol 18, Iss 6399, p 6399 (2021)
Volume 18
Issue 12
International Journal of Environmental Research and Public Health, Vol 18, Iss 6399, p 6399 (2021)
There is agreement that the pandemic has affected the healthcare system and behaviour of patients. This study aims to identify problems encountered by patients with phenylketonuria (PKU) and their parents/caregivers during the six-week pandemic lockd
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::40229223024495371745d815fc289a17
Autor:
Radosław Motkowski, Barbara Iwona Wojcicka-Bartlomiejczyk, Maria Gizewska, Ewa Starostecka, Justyna Szyszko, Agnieszka Chrobot, Bożena Mikołuć, Agata Lange, Mariola Piotrowska-Depta, Ewa Witalis, Jolanta Wierzba, Hanna Romanowska, Maria Nowacka, Magdalena Skorniewska, Bozena Didycz, Renata Mozrzymas, Andrzej Milanowski
Publikováno v:
Quality of Life Research
Purpose Phenylketonuria (PKU) still poses a therapeutic challenge for patients and medical professionals. The aim of the study was to assess both patients’ and their parents’ acceptance of the disease. Methods The study included 218 PKU patients
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::7b5f958333017fc1c827d6f5c2b493cc
https://pubmed.ncbi.nlm.nih.gov/27245777
https://pubmed.ncbi.nlm.nih.gov/27245777
Autor:
Jolanta Filipowicz, Bozena Didycz, Iwona Wojcicka-Bartlomiejczyk, Dariusz Chmielewski, Andrzej Milanowski, Maria Nowacka, Agata Lange, Bożena Mikołuć, Jolanta Amilkiewicz, Agnieszka Chrobot, Barbara Schneiberg, Ewa Starostecka
Publikováno v:
Pediatria Polska. 85:207-215
Streszczenie Wstep Do zaburzen kościotworzenia u chorych na PKU mogą doprowadzic: niekorzystne oddzialywanie samego procesu chorobowego zaburzającego budowe macierzy kostnej, stosowanie diety eliminacyjnej, zaburzone procesy wchlaniania skladnikow
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::dd92dc477633482c373d6341b972f5c6
https://doi.org/10.1016/s0031-3939(10)70025-1
https://doi.org/10.1016/s0031-3939(10)70025-1
Autor:
Jacek J Pietrzyk, Jolanta Ulewicz-Filipowicz, Maria Gizewska, Ewa Starostecka, A. Szymczakiewicz-Multanowska, Mariusz Ołtarzewski, Agnieszka Chrobot, Renata Mozrzymas, Bozena Didycz, Bożena Mikołuć, Agata Lange, Miroslaw Bik-Multanowski, Wojciech Cichy, Lukasz Kaluzny
Publikováno v:
Scopus-Elsevier
ResearcherID
ResearcherID
Tetrahydrobiopterin (BH4) has been recently approved as a treatment of patients with phenylketonuria. However, as a confirmation of BH4-responsiveness, it might require a very expensive trial treatment with BH4 or prolonged BH4-loading procedures. Th
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4a074919ff938c17c72258cf63f854c6
https://ruj.uj.edu.pl/xmlui/handle/item/108911
https://ruj.uj.edu.pl/xmlui/handle/item/108911
Autor:
Wojciech Cichy, Lukasz Kaluzny, Bozena Didycz, Miroslaw Bik-Multanowski, B. I. Wojcicka-Bartlomiejczyk, A. Bilar, Andrzej Milanowski, Renata Mozrzymas, Agnieszka Chrobot, Barbara Schneiberg, M. Nowacka, Ewa Starostecka, Agata Lange, Jolanta Amilkiewicz, Maria Gizewska
Publikováno v:
Journal of Inherited Metabolic Disease. 32:126-126
Discontinuation of dietary therapy in adults with phenylketonuria can lead to neuropsychological abnormalities and emotional problems. The aim of our study was to assess the change in quality of life in adult patients returning to the diet and to def
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b67fdfa8c7bdf31362c21937e094700c
https://doi.org/10.1007/s10545-009-9969-6
https://doi.org/10.1007/s10545-009-9969-6