They've been BITTEN: reports of institutional and provider betrayal and links with Ehlers-Danlos Syndrome patients' current symptoms, unmet needs and healthcare expectations.

Autor: Langhinrichsen-Rohling J; University of North Carolina at Charlotte, 9201 University Blvd, Colvard Hall, Charlotte, NC 28223, USA., Lewis CL; University of South Alabama, Mobile, AB, USA., McCabe S; University of North Carolina at Charlotte, Charlotte, NC, USA., Lathan EC; University of South Alabama, Mobile, AB, USA., Agnew GA; The University of Texas Southwestern Medical Center, Dallas, TX, USA., Selwyn CN; University of South Alabama, Mobile, AB, USA., Gigler ME; University of North Carolina at Charlotte, Charlotte, NC, USA.

Publikováno v: Therapeutic advances in rare disease [Ther Adv Rare Dis] 2021 Jun 14; Vol. 2, pp. 26330040211022033. Date of Electronic Publication: 2021 Jun 14 (Print Publication: 2021).