Zobrazeno 1 - 10
of 10
pro vyhledávání: '"Adam Hayden"'
Autor:
Hillary D. Lum, Bethany M. Kwan, Megan A. Morris, Shirley Otis-Green, Grace Venechuk, Adam Hayden, Megan Griff, Liz Salmi, Maija Reblin
Publikováno v:
Neuro-Oncology Practice
Background Research is needed to inform palliative care models that address the full spectrum of quality of life (QoL) needs for brain tumor patients and care partners. Stakeholder engagement in research can inform research priorities; engagement via
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4e0a8fff45d7aeaca95a57df19fc0154
https://pubmed.ncbi.nlm.nih.gov/33304602
https://pubmed.ncbi.nlm.nih.gov/33304602
Autor:
Josemari T Feliciano, Liz Salmi, Charlie Blotner, Adam Hayden, Edjah K Nduom, Bethany M Kwan, Matthew S Katz, Elizabeth B Claus
BACKGROUND The Brain Tumor Social Media (#BTSM) Twitter hashtag was founded in February 2012 as a disease-specific hashtag for patients with brain tumor. OBJECTIVE To understand #BTSM’s role as a patient support system, we describe user descriptors
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::f99b1cccd5616e8c5087e43852d80a36
https://doi.org/10.2196/preprints.22005
https://doi.org/10.2196/preprints.22005
Publikováno v:
Neuro Oncol
BACKGROUND Despite a standard of care protocol for the treatment of brain cancer, patients often suffer motor and cognitive deficits and chronic exposure to stress and anxiety, detrimental to patient quality of life (QOL). Palliative care addresses p
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5fc1fe747e966cc0b7fab3105f07b5e3
https://europepmc.org/articles/PMC6847912/
https://europepmc.org/articles/PMC6847912/
Autor:
Matthew S. Katz, Liz Salmi, Bethany M. Kwan, Josemari Feliciano, Adam Hayden, Charlie Blotner, Elizabeth B. Claus, Edjah K. Nduom
Publikováno v:
Journal of Medical Internet Research
Journal of Medical Internet Research, Vol 22, Iss 10, p e22005 (2020)
Journal of Medical Internet Research, Vol 22, Iss 10, p e22005 (2020)
Background The Brain Tumor Social Media (#BTSM) Twitter hashtag was founded in February 2012 as a disease-specific hashtag for patients with brain tumor. Objective To understand #BTSM’s role as a patient support system, we describe user descriptors
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c398ffe1a66671f3fd851aac86b40733
https://doi.org/10.2196/22005
https://doi.org/10.2196/22005
Autor:
Stephanie A. Wankowicz, Tania Simoncelli, Adam Hayden, Tom Marsilje, Brooke Maile, Beth Caldwell, Eliezer M. Van Allen, Erika Brown, Ken Deutsch
Cancer patients’ data, including clinical and genomic sequencing, typically reside within incompatible electronic health records (EHR) and/or proprietary databases in clinical laboratories or companies. Multiple academic and commercial consortia ha
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::7975de4d83ecdcfc29b5a93f395a3299
https://doi.org/10.31219/osf.io/gupvq
https://doi.org/10.31219/osf.io/gupvq
Autor:
Matthew S. Katz, Charlie Blotner, Elizabeth B. Claus, Bethany M. Kwan, Adam Hayden, Josemari Feliciano, Edjah K. Nduom, Liz Salmi
Publikováno v:
Neuro Oncol
BACKGROUND The Brain Tumor Social Media (#BTSM) Twitter hashtag was founded in February 2012 as a disease-specific hashtag for brain tumor patients. To understand #BTSM’s role as a patient support system we describe user descriptors, growth, intera
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c233f536974482cced157b7b8bb8bc7e
https://doi.org/10.1093/neuonc/noz175.330
https://doi.org/10.1093/neuonc/noz175.330
Autor:
Adam Hayden
Publikováno v:
Science. 366:42-42
With Altered Inheritance, bioethicist Francoise Baylis has authored a vivid call to action that "aims to bridge the divides between theory, science, politics, and practice" in response to increased public awareness and scientific applications of CRIS
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::3cd4544df16f39dc904ca8802038cdad
https://doi.org/10.1126/science.aaz1167
https://doi.org/10.1126/science.aaz1167
Autor:
Adam Hayden
Publikováno v:
Science. 359:1341-1341
In The Neuroscientist Who Lost Her Mind , Barbara Lipska shares the story of her firsthand experience with metastatic brain cancer. In doing so, she provides readers the opportunity to foster a "sense of connection with others who suffer" and to comb
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::158cfa3cf7437d9389da8e6608a5efc9
https://doi.org/10.1126/science.aas9782
https://doi.org/10.1126/science.aas9782
Autor:
Adam Hayden
Publikováno v:
Pleiades: Literature in Context. 36:42-42
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::dd60bc142d008d1ac1adffc7098a50a2
https://doi.org/10.1353/plc.2016.0064
https://doi.org/10.1353/plc.2016.0064
Autor:
Tarbi EC; Elise C. Tarbi is an assistant professor in the Department of Nursing at the University of Vermont in Burlington. Elizabeth G. Broden is a fellow in the Yale National Clinician Scholars Program in New Haven, CT, and has received funding from a National Institutes of Health training grant (5T32HS017589) to the Yale School of Public Health. William E. Rosa is assistant attending behavioral scientist, Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York City. Adam Hayden is an independent scholar and unaffiliated patient advocate. Brianna E. Morgan is a postdoctoral fellow in the Division of Geriatric Medicine and Palliative Care, Department of Medicine, NYU Langone Health in New York City. Contact author: Elise C. Tarbi, elise.tarbi@med.uvm.edu . The authors have disclosed no potential conflicts of interest, financial or otherwise., Broden EG, Rosa WE, Hayden A, Morgan BE
Publikováno v:
The American journal of nursing [Am J Nurs] 2023 Oct 01; Vol. 123 (10), pp. 42-48.