Zobrazeno 1 - 2
of 2
pro vyhledávání: '"APSU Rare Diseases Impacts on Families Study group"'
Autor:
Yvonne Zurynski, Marie Deverell, Troy Dalkeith, Sandra Johnson, John Christodoulou, Helen Leonard, Elizabeth J Elliott, APSU Rare Diseases Impacts on Families Study group
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 12, Iss 1, Pp 1-9 (2017)
Abstract Background Children and families living with rare disease often experience significant health, psychosocial, economic burdens and diagnostic delays. Experiences appear to be constant, regardless of the specific rare disease diagnosis. System
Externí odkaz:
https://doaj.org/article/6ac9126433ff4e36a427ce665468926e
Autor:
Zurynski, Yvonne, Deverell, Marie, Dalkeith, Troy, Johnson, Sandra, Christodoulou, John, Leonard, Helen, Elliott, Elizabeth J, APSU Rare Diseases Impacts on Families Study group
Publikováno v:
Orphanet Journal of Rare Diseases; 4/11/2017, Vol. 12, p1-9, 9p