Development of a core outcome domain set for clinical research on capillary malformations (the COSCAM project)

Autor: A. Wolkerstorfer, Pablo Boixeda, T Kono, Merete Haedersdal, Firas Al-Niaimi, Ph.I. Spuls, C. M. A. M. van der Horst, H J Laubach, A Troilius Rubin, S J Robertson, Sophie E.R. Horbach, Ginger B. Langbroek, Kristen M. Kelly, Ashraf Badawi, M I van Raath, Woraphong Manuskiatti, Dirk T. Ubbink

Publikováno v: Langbroek, G B, Wolkerstorfer, A, Horbach, S E R, Spuls, P I, Kelly, K M, Robertson, S J, van Raath, M I, Al-Niaimi, F, Kono, T, Boixeda, P, Laubach, H J, Badawi, A M, Troilius Rubin, A, Haedersdal, M, Manuskiatti, W, van der Horst, C M A M, Ubbink, D T & COSCAM study group 2021, ' Development of a core outcome domain set for clinical research on capillary malformations (the COSCAM project) ', Journal of the European Academy of Dermatology and Venereology, vol. 35, no. 9, pp. 1888-1895 . https://doi.org/10.1111/jdv.17376
Journal of the European Academy of Dermatology and Venereology : JEADV, vol 35, iss 9
Journal of the European Academy of Dermatology and Venereology, 35(9), 1888-1895. Wiley
Journal of the European Academy of Dermatology and Venereology, Vol. 35, No 9 (2021) pp. 1888-1895
Langbroek, G B, Wolkerstorfer, A, Horbach, S E R, Spuls, P I, Kelly, K M, Robertson, S J, van Raath, M I, Al-Niaimi, F, Kono, T, Boixeda, P, Laubach, H J, Badawi, A M, Troilius Rubin, A, Haedersdal, M, Manuskiatti, W, van der Horst, C M A M, Ubbink, D T & the COSCAM study group 2021, ' Development of a core outcome domain set for clinical research on capillary malformations (the COSCAM project) ', Journal of the European Academy of Dermatology and Venereology, vol. 35, no. 9, pp. 1888-1895 . https://doi.org/10.1111/jdv.17376
Journal of the European Academy of Dermatology and Venereology, 35(9), 1888-1895. Wiley-Blackwell
Journal of the European Academy of Dermatology and Venereology

Author(s): Langbroek, GB; Wolkerstorfer, A; Horbach, SER; Spuls, PI; Kelly, KM; Robertson, SJ; van Raath, MI; Al-Niaimi, F; Kono, T; Boixeda, P; Laubach, HJ; Badawi, AM; Troilius Rubin, A; Haedersdal, M; Manuskiatti, W; van der Horst, CMAM; Ubbink, D

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2cdf1029bafe1f6c6c710f299632974d
https://vbn.aau.dk/ws/files/441015067/Langbroek_et_al._2021_._Development_of_a_core_outcome_domain_set_for_clinical_research_on_capillary_malformations_the_COSCAM_project_.pdf

The Infantile Hemangioma Referral Score: A Validated Tool for Physicians

Autor: Lisa Weibel, Christine Léauté-Labrèze, Laurence M. Boon, Agneta Troilius Rubin, Eulalia Baselga Torres, Catharina Joanna Maria van der Vleuten, Maya El Hachem, Jochen Roessler

Publikováno v: Pediatrics (Evanston), 145, 4
Pediatrics (Evanston), 145
Pediatrics, Vol. 145, no. 4, p. e20191628 [1-9] (2020)

OBJECTIVES: Infantile hemangiomas (IHs) are common; some cases require timely referral and treatment to prevent complications. We developed and validated a reliable instrument for timely and adequate referral of patients with IH to experts by nonexpe

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d3ba37db1cbb5cc3a2ef094e02d161dc
https://hdl.handle.net/2066/220719

Effects of intense pulsed light in microstomia in patients with systemic sclerosis: A pilot study

Autor: Agneta Troilius Rubin, Roger Hesselstrand, Åke Svensson, Leena Lehti, Lisbeth Rosholm Comstedt

Publikováno v: Journal of Cosmetic and Laser Therapy. 19:143-148

Introduction: The effects of intense pulsed light (IPL) on collagen structures are well known in the treatment of photodamaged skin. Objective: The objective of this study was to investigate the effect of IPL on sclerotic skin by treating patients wi

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c28f4c510fcef4a8ad083a7807548364
https://doi.org/10.1080/14764172.2016.1262961

Heredity of port-wine stains: Investigation of families without a RASA1 mutation

Autor: Bo Ljunggren, Agneta Troilius Rubin, Nicole Revencu, Miikka Vikkula, Åke Svensson, Edgar Lauritzen

Publikováno v: Journal of Cosmetic and Laser Therapy
Journal of Cosmetic and Laser Therapy, Vol. 17, no.4, p. 204-208 (2015)

Background: The prevalence of capillary malformations, also known as port-wine stains (PWS), is 0.3%. Familial segregation can occur. The capillary malformation–arteriovenous malformation (CM-AVM) phenotype is caused by mutations in the RASA1 gene.

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::57b33f2dccaa0d7d91fe582825a84059
https://doi.org/10.3109/14764172.2015.1007060

Validation d’un outil d’évaluation de l’hémangiome Infantile (HI) permettant à un clinicien non expert d’identifier les patients à orienter vers un centre spécialisé

Autor: Y Chalem, A. Delarue, F. Zumaglini, Christine Léauté-Labrèze, J.-J. Voisard, M. El Hachem, C. Van der Vleuten, Eulalia Baselga, Laurence M. Boon, Jochen Rössler, A. Troilius Rubin, M Auges, A Zkik, Lisa Weibel

Publikováno v: Annales de Dermatologie et de Vénéréologie. 145:S206

Introduction L’hemangiome infantile (HI) est la tumeur benigne la plus frequente du nourrisson. Son evolution naturelle est habituellement la regression spontanee. Certaines formes compliquees peuvent entrainer douleur, dysfonction d’un organe, d

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::169dfc053968ed63e4c9b668b3b2c760
https://doi.org/10.1016/j.annder.2018.09.300