The expanded French compassionate programme for elexacaftor–tezacaftor–ivacaftor use in people with cystic fibrosis without a F508del CFTR variant: a real-world study

Autor: Kanaan, Reem, Carlier, Nicolas, Honoré, Isabelle, Chedevergne, Frédérique, Dreano, Elise, Hatton, Aurélie, Hinzpeter, Alexandre, Pranke, Iwona, Le Clainche-Viala, Laurence, Mayer, Sophie, Corvol, Harriet, Thouvenin, Guillaume, de Miranda, Sandra, Remus, Natascha, Douvry, Benoit, Duthoit, Louise, Perez, Thierry, Le Rouzic, Olivier, Wizla, Nathalie, Bon, Claire, Bui, Stéphanie, Poey, Nora, Stremler, Nathalie, Coltey, Bérengère, Dufeu, Nadine, Lebihan, Jean, Gabsi, Asma, Pouradier, Delphine, Andrejak, Claire, Rames, Cinthia, Dupuy-Grasset, Magali, Languepin, Jeanne, Marguet, Christophe, Pramil, Stéphanie, Arnouat, Baptiste, Fanton, Annlyse, Abely, Michel, Ravoninjatovo, Bruno, Blondé, Aurore, Guillaumot, Anne, Kieffer, Sebastien, Tatopoulos, Aurélie, Nove-Josserand, Raphaële, Ohlmann, Camille, Perrin, Thomas, Reynaud, Quitterie, Llerena, Catherine, Quétant, Sébastien, Valois, Sophie, Dalphin, Marie-Laure, Richaud-Thiriez, Bénédicte, Deneuville, Eric, Chiron, Raphael, Socchi, Floriane, Bihouée, Tiphaine, Mankikian, Julie, Flament, Thomas, Coolen-Allou, Nathalie, Gachelin, Elsa, Périsson, Caroline, Vuillard, Constance, Dupuis, Marion, Alkoussa, Wael, Marchal, Sarah, Leroy, Sylvie, Scalbert, Manuela, Campbell, Karine, Laurans, Muriel, Labbé, Guillaume, Montcouquiol, Sylvie, Priou, Pascaline, de Carli, Paola, Lemonnier, Lydie, Dehillotte, Clémence, Nouvel, Thierry, Burgel, Pierre-Régis ^{a, b, d, *}, Sermet-Gaudelus, Isabelle ^{d, e, f}, Girodon, Emmanuelle ^c, Durieu, Isabelle ^{d, g, h}, Houdouin, Véronique ^y, Audousset, Camille ^{i, j}, Macey, Julie ^k, Grenet, Dominique ^l, Porzio, Michele ^m, Murris-Espin, Marlène ⁿ, Reix, Philippe ^o, Baravalle, Mélisande ^p, Belleguic, Chantal ^q, Mely, Laurent ^r, Verhille, Juliette ^s, Weiss, Laurence ^t, Reynaud-Gaubert, Martine ^u, Mittaine, Marie ^v, Hamidfar, Rebecca ^w, Ramel, Sophie ^x, Cosson, Laure ^z, Danner-Boucher, Isabelle ^ab, Foucaud, Pierre ^ac, Roy, Charlotte ^e, Burnet, Espérie ^{b, d}, Raynal, Caroline ^{ad, ae}, Audrezet, Marie-Pierre ^{af, ag}, Da Silva, Jennifer ^{b, d}, Martin, Clémence ^{a, b, d}

Publikováno v: In The Lancet Respiratory Medicine November 2024 12(11):888-900

Impact of COVID-19 infection on lung function and nutritional status amongst individuals with cystic fibrosis: A global cohort study

Autor: Kasmi, Irena ¹, Drali, Ouardia ², Burghart, Sabine ³, Lakatos-Krepcik, Andrea ³, Eder, Johannes ⁴, Jaksch, Peter ⁵, Kainz, Katharina ⁶, Kallinger, Margit ⁷, Leitner, Alexander ⁸, Mozdzen, Marta ⁹, Pfleger, Andreas ¹⁰, Renner, Sabine ¹¹, Stadlinger, Martin ¹², Thir, Christina ¹³, Nuriyev, Emil ¹⁴, Boboli, Hedwige ¹⁵, De Wachter, Elke ¹⁶, Dupont, Lieven ¹⁷, Gohy, Sophie ¹⁸, Hanssens, Laurence ¹⁹, Knoop, Christiane ²⁰, Lammertyn, Elise ^{21, ⁎}, Nowé, Vicky ²², Pirson, Jessica ²³, Thimmesch, Matthieu ²⁴, Van Braeckel, Eva ²⁵, Van Hoorenbeeck, Kim ²⁶, Vanderhelst, Eef ²⁷, Filho, Eduardo Piacentini ²⁸, Athanazio, Rodrigo Abensur ²⁹, Martins, Valéria de Carvalho ³⁰, Duarte, Marta Cristina ³¹, Monte, Luciana de Freitas Velloso ³², de Fuccio, Marcelo Bicalho ³³, Knabben, Adriana de Siqueira Carvalho ³⁴, Melloti, Roberta ³⁵, Meneses, Daniela Gois ³⁶, Petrova, Guergana ³⁷, Tješić-Drinković, Duška ³⁸, Dugac, Andrea Vukić ³⁸, Bambir, Ivan ³⁸, Yiallouros, Panayiotis ³⁹, Bilkova, Alena ⁴⁰, Drevinek, Pavel ⁴⁰, Macek, Milan, Jr ^{41, ⁎}, Olesen, Hanne Vebert ⁴², Pressler, Tania ⁴³, Fouda, Eman Mahmoud ⁴⁴, Nasr, Samya ⁴⁵, Weldetsadik, Abate Yeshidinber ⁴⁶, Al-iede, Montaha ⁴⁷, Abdrakhmanov, Olzhas ⁴⁸, Corvol, Harriet ⁴⁹, Lemonnier-Videau, Lydie ⁵⁰, Abely, Michel ⁵¹, Piccini, Carole Bailly ⁵², Belleguic, Chantal ⁵³, Bihouee, Tiphaine ⁵⁴, Billon, Yves ⁵⁵, Bui, Stéphanie ⁵⁶, Camara, Boubou ⁵⁷, Cheraud, Marie-Christine ⁵⁸, Chiron, Raphael ⁵⁹, Duet, Emmanuelle Coirier ⁶⁰, Cosson, Laure ⁶¹, Dalphin, Marie-Laure ⁶², Boucher, Isabelle Danner ⁶³, De Miranda, Sandra ⁶⁴, Deneuville, Eric ⁶⁵, Dubus, Jean-Christophe ⁶⁶, Durieu, Isabelle ⁶⁰, Epaud, Ralph ⁶⁸, Gerardin, Michèle ⁶⁹, Grenet, Dominique ⁷⁰, Houdouin, Véronique ⁷¹, Huet, Frédéric ⁷², Reem, Kanaan ⁷³, Kessler, Romain ⁷⁴, Languepin, Jeanne ⁷⁵, Laurans, Muriel ⁷⁶, Leroy, Sylvie ⁷⁷, Llerena, Cathie ⁷⁸, Macey, Julie ⁷⁹, Mankikian, Julie ⁸⁰, Marguet, Christophe ⁸¹, Martin, Clémence ⁸², Mely, Laurent ⁸³, Mittaine, Marie ⁸⁴, Murris-Espin, Marlène ⁸⁵, Perisson, Caroline ⁸⁶, Prevotat, Anne ⁸⁷, Ramel, Sophie ⁸⁸, Rames, Cinthia ⁸⁹, Reix, Philippe ⁹⁰, Revillon, Marine ⁹¹, Reynaud-Gaubert, Martine ⁹², Richaud-Thiriez, Bénédicte ⁹³, Rittie, Jean-Luc ⁹⁴, Scalbert-Dujardin, Manuëla ⁹⁵, Sermet-Gaudelus, Isabelle ⁹⁶, Storni, Véronique ⁹⁷, Tatopoulos, Aurélie ⁹⁸, Thouvenin, Guillaume ⁹⁹, Troussier, Françoise ¹⁰⁰, Weiss, Laurence ¹⁰¹, Wizla, Nathalie ¹⁰², Behl, Eva-Susanne ¹⁰⁰, Brinkmann, Folke ¹⁰⁴, Claßen, Martin ¹⁰⁵, Graepler-Mainka, Ute ¹⁰⁶, Griese, Matthias ¹⁰⁷, Grübl, Armin ¹⁰⁸, Hammermann, Jutta ¹¹⁰, Hebestreit, Helge ¹¹¹, Heinzmann, Andrea ¹¹², Herz, Alexander ¹¹³, Kiefer, Alexander ¹¹⁴, Kinder, Birte ¹¹⁵, Köster, Holger ¹¹⁶, Kuhnert, Stefan ¹¹⁷, Mainz, Jochen ¹¹⁸, Mayer, Angelika ¹¹⁹, Naehrig, Susanne ¹²⁰, Niehues, Tim ¹²¹, Nüßlein, Thomas ¹²², Poplawska, Krystyna ¹²³, Ringshausen, Felix ¹²⁴, Rose, Markus ¹²⁵, Rosenecker, Josef ¹²⁶, Ruppel, Renate ¹²⁷, Scharschinger, Anette ¹²⁸, Schropp, Christian ¹²⁹, Schwarz, Carsten ¹³⁰, Smaczny, Christina ¹³¹, Sommerburg, Olaf ¹³², Sutharsan, Sivagurunathan ¹³³, Stolz, Simone ¹³⁴, Thomas, Wolfgang ¹³⁵, Wege, Sabine ¹³⁶, Welzenbach, Britta ¹³⁷, Wollschläger, Bettina ¹³⁸, Diamantea, Filia ¹³⁹, Hatziagorou, Elpis ¹⁴⁰, Manika, Katerina ¹⁴¹, Cox, Des ¹⁴², Elnazir, Basil ¹⁴³, Fletcher, Godfrey ¹⁴⁴, Gunaratnam, Cedric ¹⁴⁵, McKone, Edward F. ¹⁴⁶, Plant, Barry J. ¹⁴⁷, Cohen-Cymberknoh, Malena ¹⁴⁸, Gur, Michal ¹⁴⁹, Livnat, Galit ¹⁵⁰, Mei-Zahav, Meir ¹⁵¹, Amato, Annalisa ¹⁵², Ferrari, Gianluca ¹⁵², Badolato, Raffaele ¹⁵³, Poli, Piercarlo ¹⁵³, Battistini, Fiorella ¹⁵⁴, Donati, Valentina ¹⁵⁴, Bignamini, Elisabetta ¹⁵⁵, Folino, Anna ¹⁵⁵, Carnovale, Vincenzo ¹⁵⁶, Castellani, Carlo ¹⁵⁷, Casciaro, Rosaria ¹⁵⁷, Cimino, Giuseppe ¹⁵⁸, Cipolli, Marco ¹⁵⁹, Lucca, Francesca ¹⁵⁹, Collura, Mirella ¹⁶⁰, Ficili, Francesca ¹⁶⁰, Daccò, Valeria ¹⁶¹, Gagliano, Vanessa ¹⁶¹, Pizzamiglio, Giovanna ¹⁶¹, Mencarini, Valeria ¹⁶², Palladino, Nicola ¹⁶², Leonardi, Salvatore ¹⁶³, Rotolo, Novella ¹⁶³, Lucanto, Maria Cristina ¹⁶⁴, Quattromano, Ester ¹⁶⁴, Lucidi, Vincenzina ¹⁶⁵, Majo, Fabio ¹⁶⁵, Alghisi, Federico ¹⁶⁵, Ciciriello, Fabiana ¹⁶⁵, Manca, Antonio ¹⁶⁶, Leonetti, Giuseppina ¹⁶⁶, Maschio, Massimo ¹⁶⁷, Messore, Barbara ¹⁶⁸, Pantano, Stefano ¹⁶⁹, Pisi, Giovanna ¹⁷⁰, Spaggiari, Cinzia ¹⁷⁰, Raia, Valeria ¹⁷¹, Laezza, Caterina ¹⁷¹, Ros, Mirco ¹⁷², Salvatore, Donatello ¹⁷³, Taccetti, Giovanni ¹⁷⁴, Francalanci, Michela ¹⁷⁴, Vitullo, Pamela ¹⁷⁵, Zolin, Anna ^{176, ⁎}, Aleksejeva, Elina ¹⁷⁷, Malakauskas, Kestutis ¹⁷⁸, Misevičiene, Valdone ¹⁷⁹, Charatsi, Anna-Maria ¹⁸⁰, la Barrière, Hélène De ¹⁸¹, Altenburg, Josje ¹⁸², Bannier, Michiel ¹⁸³, Heijerman, Harry ¹⁸⁴, Janssens, Hettie ¹⁸⁵, Koppelman, Gerard ¹⁸⁶, van der Meer, Renske ¹⁸⁷, Merkus, Peter ¹⁸⁸, Nuijsink, Marianne ¹⁸⁹, Terheggen, Suzanne ²⁰⁰, van der Vaart, Hester ²⁰¹, Wesseling, Geert-Jan ²⁰², de Winter, Karin ²⁰³, Danevska, Ivana Arnaudova ²⁰⁴, Maretti, Tatjana Jakovska ²⁰⁴, Fustik, Stojka ²⁰⁵, Dziecichowicz-Latała, Daria ²⁰⁶, Wojsyk-Banaszak, Irena ²⁰⁷, Wozniacki, Lukasz ²⁰⁸, Amorim, Adelina ²⁰⁹, Santos, Ana Sofia Araújo ²¹⁰, Castanhinha, Susana ²¹⁰, Gamboa, Fernanda ²¹¹, Silva, Teresa Reis ²¹¹, Gonçalves, Fabienne ²¹², Pereira, Luísa ²¹⁴, Ciuca, Ioana ²¹⁵, Silva, Sónia ²¹³, Csilla-Enikö, Szabo ²¹⁶, Stan, Iustina ²¹⁷, Amelina, Elena ²¹⁸, Boitсova, Evgeniya ²¹⁹, Chernyavskaya, Anastasia ²²⁰, Gorinova, Yuliya ²²¹, Krasovskiy, Stanislav ²²², Mukhina, Maria ²²², Sherman, Victoria ²²³, Simonova, Olga ²²⁴, Kondratyeva, Elena ²²⁵, Bérešová, Eva ²²⁶, Bližnáková, Nina ²²⁷, Kayserová, Hana ²²⁷, Salobir, Barbara ²²⁸, Šelb, Julij ²²⁹, Krivec, Uroš ²³⁰, Fernandez, Antonio José Aguilar ²³¹, Fernàndez, Antonio Alvarez ²³², García, Félix Baranda ²³³, Aparicio, Marina Blanco ²³⁴, Corullón, Silvia Castillo ²³⁵, Cortell-Aznar, Isidoro ²³⁶, Pérez, Inés ²³⁶, Colomer, Jordi Costa i ²³⁷, Roig, María Cols ²³⁷, Pecellín, Isabel Delgado ²³⁸, Cáceres, Layla Diab ²³⁹, Paredes, Carmen Luna ²³⁹, Gartner, Silvia ²⁴⁰, Martínez, José Ramón Gutiérrez ²⁴¹, Labarga, Inés Herrero ²⁴², Girón-Moreno, Rosa Maria ²⁴³, Nogueira, Esperanza Jiménez ²⁴⁴, Ferreiro, Adelaida Lamas ²⁴⁵, Neyra, Alejandro López ²⁴⁵, Castro, Enrique Blitz ²⁴⁵, Galarraga, Laura Moreno ²⁴⁶, de Vincente, Carlos Martin ²⁴⁷, Navarro, Silvia Merlos ²⁴⁸, Nieto-Royo, Rosa ²⁴⁹, Fuster, Casilda Olveira ²⁵⁰, Pastor, Maria Dolores ²⁵¹, Pérez-Ruiz, Estela ²⁵², Prados-Sánchez, Concepción ²⁵³, Cancelo, Isabel Ramos ²⁵⁴, de Valbuena, Marta Ruiz ²⁵⁵, Asensi, José R. Villa ²⁵⁶, Santiago, Veronica Sanz ²⁵⁶, García, Patricia Fernández ²⁵⁶, Tawfeeq, Reem Mustafa ²⁵⁷, Banki, Adrienn ²⁵⁸, Gilljam, Marita ²⁵⁹, Krantz, Christina ²⁶⁰, Lindberg, Ulrika ²⁶¹, Lindblad, Anders ^{262, ⁎}, Clarenbach, Christian ²⁶², Steinack, Carolin ²⁶², Hage, René ²⁶², Schuurmans, Macé ²⁶³, Fischer, Reta ²⁶⁴, Kusche, Rachel ²⁶⁵, Rochat, Isabelle ²⁶⁶, Walter, Anna-Lena ²⁶⁸, Kamalaporn, Harutai ²⁶⁹, Hamouda, Samia ²⁷⁰, Tural, Dilber Ademhan ²⁷¹, Ozcelik, Ugur ²⁷¹, Asfuroğlu, Pelin ²⁷², Eyüboğlu, Tuğba Şişmanlar ²⁷², Aslan, Ayse Tana ²⁷², Bingöl, Ayşen ²⁷³, Çobanoğlu, Nazan ²⁷⁴, Ozcan, Gizem ²⁷⁴, Dogru, Deniz ²⁷⁴, Gökdemir, Yasemin ²⁷⁵, KÖSE, Mehmet ²⁷⁶, Pekcan, Sevgi ²⁷⁷, Cosgriff, Rebecca ²⁷⁸, Semenchuk, Julie ^a, Naito, Yumi ^b, Charman, Susan C. ^b, Carr, Siobhán B ^c, Cheng, Stephanie Y. ^d, Marshall, Bruce C. ^e, Faro, Albert ^e, Elbert, Alexander ^e, Gutierrez, Hector H. ^f, Goss, Christopher H. ^g, Karadag, Bulent ^h, Burgel, Pierre-Régis ⁱ, Colombo, Carla ^j, Salvatore, Marco ^k, Padoan, Rita ^l, Daneau, Géraldine ^m, Harutyunyan, Satenik ⁿ, Kashirskaya, Nataliya ^o, Kirwan, Laura ^p, Middleton, Peter G ^q, Ruseckaite, Rasa ^r, de Monestrol, Isabelle ^s, Naehrlich, Lutz ^t, Mondejar-Lopez, Pedro ^u, Jung, Andreas ^v, van Rens, Jacqui ^w, Bakkeheim, Egil ^x, Orenti, Annalisa ^y, Zomer-van Ommen, Domenique ^z, da Silva-Filho, Luiz Vicente RF ^aa, Fernandes, Flavia Fonseca ^ab, Zampoli, Marco ^ac, Stephenson, Anne L. ^{a, ⁎}

Publikováno v: In Journal of Cystic Fibrosis September 2024 23(5):815-822

L’enveloppement, l’habillage et les tissus en contact avec l’enfant en néonatologie

Autor: Allen, A. ^e, Audeoud, F. ^f, Bouvard, C. ^g, Brandicourt, A. ^h, Caeymaex, L. ⁱ, Duboz, M.A. ^j, Evrard, A. ^k, Fichtner, C. ^l, Fischer-Fumeaux, C. ^m, Girard, L. ⁿ, Gonnaud, F. ^o, Hüppi, P. ^p, Knezovic, N. ^q, Kuhn, P. ^q, Laprugne-Garcia, E. ^o, Legouais, S. ^r, Mons, F. ^s, Muller, J.-B. ^t, Picaud, J.-C. ^o, Pierrat, V. ^u, Pladys, P. ^v, Reynaud, A. ^w, Renesme, L. ^x, Rideau, A. ^y, Sizun, J. ^z, Souet, G. ^aa, Thiriez, G. ^ab, Tourneux, P. ^ac, Touzet, M. ^ad, Truffert, P. ^ae, Tscherning, C. ^af, Zaoui, C. ^ag, Zana-Taieb, E. ^ah, Zores-Koenig, C. ^q, Berne Audéoud, F. ^{a, ⁎}, Lenglemetz, S.L. ^b

Publikováno v: In Perfectionnement en Pédiatrie March 2023 6(1):75-83

Book Review. Corine Pelluchon, Paul Ricœur, philosophe de la reconstruction. Soin, attestation, justice (Paris : Puf, 2022)

Autor: Azadeh Thiriez-Arjangi

Publikováno v: Études Ricoeuriennes / Ricoeur Studies, Vol 14, Iss 1 (2023)

Externí odkaz: https://doaj.org/article/1f3bdca2abef4f3486f7aa232c3ad632

Tento výsledek nelze pro nepřihlášené uživatele zobrazit.
K zobrazení výsledku je třeba se přihlásit.