Zobrazeno 1 - 10
of 48
pro vyhledávání: '"A. Cecilia Jimenez-Moreno"'
Autor:
Meredith Y. Smith, Rosanne Janssens, A. Cecilia Jimenez-Moreno, Irina Cleemput, Mireille Muller, Serena Oliveri, Gwenda Simons, Valentina Strammiello, Isabelle Huys, Marie Falahee
Publikováno v:
Research Involvement and Engagement, Vol 9, Iss 1, Pp 1-14 (2023)
Plain English summary Research about patients’ preferences for medicinal products and treatments is growing. Such research could be improved if patients were involved as ‘research partners,’ that is, as active members of the study team itself.
Externí odkaz:
https://doaj.org/article/883f8e55b13c485a9cac4b1bdb4fbca1
Autor:
Enrique Alvarez, Joanne Fielding, John Parratt, Ivan J Clement, Dorsa Khazaei, Cecilia Jimenez-Moreno, Donald M Bushnell, Diogo Santos-Pata
Publikováno v:
BMJ Neurology Open, Vol 6, Iss Suppl 1 (2024)
Externí odkaz:
https://doaj.org/article/5bf861b66d414b3b9a2d93831765863b
Autor:
Vikas Soekhai, Bas Donkers, Jennifer Viberg Johansson, Cecilia Jimenez-Moreno, Cathy Anne Pinto, G. Ardine de Wit, Esther de Bekker-Grob
Publikováno v:
Patient, 16(3), 239-253. Springer Science+Business Media
Patient-patient centered outcomes research, 16(3), 239-253. Springer Science + Business Media
Soekhai, V, Donkers, B, Johansson, J V, Jimenez-Moreno, C, Pinto, C A, de Wit, G A & de Bekker-Grob, E 2023, ' Comparing Outcomes of a Discrete Choice Experiment and Case 2 Best-Worst Scaling : An Application to Neuromuscular Disease Treatment ', Patient-patient centered outcomes research, vol. 16, no. 3, pp. 239-253 . https://doi.org/10.1007/s40271-023-00615-0
Patient-patient centered outcomes research, 16(3), 239-253. Springer Science + Business Media
Soekhai, V, Donkers, B, Johansson, J V, Jimenez-Moreno, C, Pinto, C A, de Wit, G A & de Bekker-Grob, E 2023, ' Comparing Outcomes of a Discrete Choice Experiment and Case 2 Best-Worst Scaling : An Application to Neuromuscular Disease Treatment ', Patient-patient centered outcomes research, vol. 16, no. 3, pp. 239-253 . https://doi.org/10.1007/s40271-023-00615-0
BACKGROUND AND OBJECTIVES: Case 2 best-worst scaling (BWS-2) is an increasingly popular method to elicit patient preferences. Because BWS-2 potentially has a lower cognitive burden compared with discrete choice experiments, the aim of this study was
Autor:
Renae J. Stefanetti, Alasdair Blain, Cecilia Jimenez-Moreno, Linda Errington, Yi Shiau Ng, Robert McFarland, Doug M. Turnbull, Jane Newman, Gráinne S Gorman
Publikováno v:
Wellcome Open Research, Vol 5 (2020)
Background: The benefit and safety of exercise training for patients with neuromuscular disorders (NMDs) has long been a contentious topic. This is, in part, due to recognised challenges associated with rare diseases including small and heterogenous
Externí odkaz:
https://doaj.org/article/106828b095084de08792824715c72390
Publikováno v:
Frontiers in Medicine, Vol 7 (2020)
Objectives: A factor contributing to the value of patient preference studies is patient centricity. This study aimed to explore how patients want to be involved in the design and conduct of patient preference studies. In addition, we investigated pat
Externí odkaz:
https://doaj.org/article/f0150ac4e2514da19c5d680414e06db4
Autor:
Libby Wood, Guillaume Bassez, Corinne Bleyenheuft, Craig Campbell, Louise Cossette, Aura Cecilia Jimenez-Moreno, Yi Dai, Hugh Dawkins, Jorge Alberto Diaz Manera, Celine Dogan, Rasha el Sherif, Barbara Fossati, Caroline Graham, James Hilbert, Kristinia Kastreva, En Kimura, Lawrence Korngut, Anna Kostera-Pruszczyk, Christopher Lindberg, Bjorn Lindvall, Elizabeth Luebbe, Anna Lusakowska, Radim Mazanec, Giovani Meola, Liannna Orlando, Masanori P. Takahashi, Stojan Peric, Jack Puymirat, Vidosava Rakocevic-Stojanovic, Miriam Rodrigues, Richard Roxburgh, Benedikt Schoser, Sonia Segovia, Andriy Shatillo, Simone Thiele, Ivailo Tournev, Baziel van Engelen, Stanislav Vohanka, Hanns Lochmüller
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 13, Iss 1, Pp 1-11 (2018)
Abstract Background Myotonic Dystrophy is the most common form of muscular dystrophy in adults, affecting an estimated 10 per 100,000 people. It is a multisystemic disorder affecting multiple generations with increasing severity. There are currently
Externí odkaz:
https://doaj.org/article/cc2d675314b54dc3be1bfaec5e0a7e85
Autor:
Sebastian Heidenreich, Lila J. Finney Rutten, Lesley‐Ann Miller‐Wilson, Cecilia Jimenez‐Moreno, Gin Nie Chua, Deborah A. Fisher
Publikováno v:
Cancer Medicine. 11:3156-3167
Guidelines include several options for average-risk colorectal cancer (CRC) screening that vary in aspects such as invasiveness, recommended frequency, and precision. Thus, patient and provider preferences can help identify an appropriate screening s
Autor:
Kevin Marsh, Nicolas Krucien, Sebastian Heidenreich, Aura Cecilia Jimenez-Moreno, Heather Gelhorn, Tommi Tervonen
Publikováno v:
Patient-Patient: centered outcomes research, 14, 373-377. ADIS INT LTD
The Patient
The Patient-Patient-Centered Outcomes Research
The Patient
The Patient-Patient-Centered Outcomes Research
Autor:
Kristin Bullok, Grainne S. Gorman, Cathy Anne Pinto, A Cecilia Jimenez-Moreno, G. Ardine de Wit, Esther W. de Bekker-Grob, Eline van Overbeeke, Chiara Whichello, Ian Smith, Isabelle Huys, James S. Ormrod, Bennett Levitan, Jenny Sharpe
Publikováno v:
Patient, 14(5), 601-612. Springer Science+Business Media
The Patient-Patient-Centered Outcomes Research
The Patient
The Patient-Patient-Centered Outcomes Research
The Patient
Introduction It has become increasingly important to include patient preference information in decision-making processes for drug development. As neuromuscular disorders represent multisystem, debilitating, and progressive rare diseases with few trea
Autor:
Libby Wood, Guillaume Bassez, Corinne Bleyenheuft, Craig Campbell, Louise Cossette, Aura Cecilia Jimenez-Moreno, Yi Dai, Hugh Dawkins, Jordi Díaz-Manera, Celine Dogan, Rasha el Sherif, Barbara Fossati, Caroline Graham, James Hilbert, Kristinia Kastreva, En Kimura, Lawrence Korngut, Anna Kostera-Pruszczyk, Christopher Lindberg, Bjorn Lindvall, Elizabeth Luebbe, Anna Lusakowska, Radim Mazanec, Giovani Meola, Liannna Orlando, Masanori P. Takahashi, Stojan Peric, Jack Puymirat, Vidosava Rakocevic-Stojanovic, Miriam Rodrigues, Richard Roxburgh, Benedikt Schoser, Sonia Segovia, Andriy Shatillo, Simone Thiele, Ivailo Tournev, Baziel van Engelen, Stanislav Vohanka, Hanns Lochmüller
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 14, Iss 1, Pp 1-1 (2019)
The original version of this article [1] unfortunately included an error to an author’s name. Author Jordi Díaz-Manera was erroneously presented as Jorge Alberto Diaz Manera. The correct author name has been included in the author list of this Cor
Externí odkaz:
https://doaj.org/article/3d421795de054b8797ffba84621edb38