Experiences of quality of life and access to health services among rare disease caregivers: a scoping review.

Autor: Černe, Tina¹ (AUTHOR) tina.cerne@mf.uni-lj.si, Kragelj, Lijana Zaletel² (AUTHOR), Turk, Eva^3,4 (AUTHOR), Pavlič, Danica Rotar¹ (AUTHOR)

Publikováno v: Orphanet Journal of Rare Diseases. 8/31/2024, Vol. 19 Issue 1, p1-13. 13p.

The importance of environmental design in palliative care: the application of environmental psychology knowledge

Autor: Černe, Tina

Publikováno v: Koper

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=od______3506::0f4fd62f0e9e8f69bf4c774b8ac9b3b0
http://www.cobiss.si/scripts/cobiss?command=DISPLAY&base=cobib&rid=1536770756&fmt=11

Needs and Experiences With Health Care Providers of Adult Rare Disease Patients and Caregivers of People With Rare Diseases: Protocol for a Qualitative Study.

Autor: Černe T; Deparment of Family Medicine, Univeristy of Ljubljana, Ljubljana, Slovenia., Turk E; Center for Digital Health and Social Innovation, Department of Health Sciences, Univerisity of St. Pölten, St. Pölten, Austria.; Medical Faculty, University of Maribor, Maribor, Slovenia., Mirosevic S; Deparment of Family Medicine, Univeristy of Ljubljana, Ljubljana, Slovenia., Rotar Pavlič D; Deparment of Family Medicine, Univeristy of Ljubljana, Ljubljana, Slovenia.

Publikováno v: JMIR research protocols [JMIR Res Protoc] 2024 Apr 22; Vol. 13, pp. e53362. Date of Electronic Publication: 2024 Apr 22.