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Autor:
John W. Day, Mar Tulinius, Alan Pestronk, Tina Duong, Tulio E. Bertorini, Alberto Dubrovsky, Nanette C. Joyce, Anne M. Connolly, Hanna Kolski, Lauren P. Morgenroth, Hoda Abdel-Hamid, Ksenija Gorni, Craig M. McDonald, Erik K Henricson, Erik Landfeldt, Yoram Nevo, Jose Carlo, Sherilyn W. Driscoll, Laura McAdam, S. Chidambaranathan, Paula R. Clemens, Avital Cnaan, Jean Teasley, W. Douglas Biggar, Joel Iff, Andrew J. Kornberg, Nancy L. Kuntz, E. Henricson, Jean K. Mah, Carolina Tesi-Rocha, Robert T. Leshner, Mathula Thangarajh, Richard D. Webster, V. Vishwanathan, Monique M. Ryan, John B. Bodensteiner, Timothy Lotze, Richard T. Abresch, Peter I. Karachunski
Publikováno v:
Value Health
OBJECTIVES: The objective of this study was to examine the psychometric properties of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales (PedsQL 4.0 GCS) in Duchenne muscular dystrophy (DMD), a rare, severely debilitating, and ultimately
Publikováno v:
Creative Nursing. 27:216-219
This article is a report of a project to improve the quality and duration of sleep among patients ages 3–17 years in an outpatient mental health clinic. The Pediatric Insomnia Severity Index (PISI) (now the Behavioral Sleep Medicine Clinic Sleep Qu
Autor:
Valentina Biagioli, Elisa Piccinelli, Emanuela Tiozzo, Serena Fondi, Francesca Alibrandi, Immacolata Dall'Oglio, Riccardo Ricci, Orsola Gawronski, Erika Margarella, Simone Piga, Italo Ciaralli
Publikováno v:
Journal of Pediatric Oncology Nursing. 38:82-93
This study aimed to evaluate the intensity and characteristics of pain, which was assessed at home by children with cancer or their parents using an app for mobile devices, for a 1-month poststudy enrollment. The participants of this observational pr
Publikováno v:
Pain Management Nursing. 21:488-494
Background Although pain undeniably has negative consequences, pain management often remains suboptimal, particularly in the pediatric population in the emergency room (ER). Aim In this observational study using qualitative and quantitative methods,
Publikováno v:
Pediatric Physical Therapy. 32:278-313
Background Developmental coordination disorder (DCD), classified as a neurodevelopmental disorder in the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5), affects approximately 5% to 6% of school-aged children. Characteris
Publikováno v:
Journal of Pediatric Oncology Nursing. 37:423-430
Psychological interventions have shown benefit in reducing symptoms in children and adolescents with cancer. More recently, mindfulness-based interventions (MBIs) have been shown to be a promising approach to symptom intervention in adolescents with
Autor:
Lori Quinn, Agnes McConlogue Ferro
Publikováno v:
Pediatric Physical Therapy. 32:211-217
Introduction Goal setting is an important component of school-based physical therapy; however, evidence suggests that therapists may not consistently write goals that are relevant, context specific, and measurable. The aims of this knowledge translat
Publikováno v:
Hosp Pediatr
OBJECTIVES: Neuromuscular scoliosis (NMS) can result in severe disability. Nonoperative management minimally slows scoliosis progression, but operative management with posterior spinal fusion (PSF) carries high risks of morbidity and mortality. In th
Autor:
Danielle Gomez, Brady Slater, V. Reid Sutton, Mahim Jain, David Cuthbertson, Eric S. Orwoll, Frank Rauch, Deborah Krakow, Francis H. Glorieux, Tracy Hart, Chaya N. Murali, Jeffrey P. Krischer, Sandesh C.S. Nagamani, Jean-Marc Retrouvey, David R. Eyre, Dianne Nguyen, Michael B. Bober, Gerald F. Harris, Peter A. Smith, Alicia Turner, Laura L. Tosi, Paul Esposito, Cathleen L. Raggio, Eric T. Rush, Brendan Lee
Publikováno v:
Genetics in medicine : official journal of the American College of Medical Genetics
Purpose: Patient-reported outcome measures (PROMs) are increasingly recognized as valuable endpoints in clinical trials. Pediatric Outcomes Data Collection Instrument (PODCI) is a PROM utilized in children with musculoskeletal disorders. We evaluated
Publikováno v:
Advanced Emergency Nursing Journal. 42:63-70
Pediatric concussions are common and many children seek care in emergency departments. Providing concussion discharge instructions to patients and families is part of routine standard of care. The objective of this study was to determine whether the